Another gloomy day...where is our Manitoba sunshine???
Things are settling down nicely...Noah is doing well and had another good day off CPAP. He is ready to be transfered out of PICU and to the ward, however because of a bed crunch and staffing issues, he is still in the unit for another night. Hopefully tomorrow we can get to the ward and then put together a plan to get home soon. The respirologist on call is on board, and so it sounds like home nocturnal CPAP is the new plan...hopefully this will go a long ways in helping Noah.
On September 21/05 we were blessed with a beautiful son. Born with a chromosome 12q deletion (q15q21.2), the challenges were many...cleft lip/palate, complex feeding issues, developmental delays, failure to thrive, multiple infections, blood clots, asthma, sleep apnea, GI and pulmonary bleeds, TPN dependency and kidney issues. Noah embraced life and taught us how to love. On July 29/09, Noah's journey ended, leaving us on a new journey...this journey on the pathway of grief...
About Me
- Nichole
- I am mom to 3 beautiful children. I also work casual as a nurse. Our life is a crazy one, and nothing like we ever expected it would be. Yet, this journey has changed me and the way I view others. And it has helped us slow down and enjoy the most precious things in life. I wouldn't trade those lessons for anything.
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8 comments:
God never ceases to amaze me. I never doubted it for a minute. ALLELUIA!!! Love mom
That is fantastic news!! Sorry you guys have no sunshine. Hopefully it will come out soon. Glad to hear about the CPAP. It seems like that would make a huge difference!
Hang in there! Still praying here!
Good job Noah. Keep working hard and enjoying that "baby crack" (baby Einstein video's). I loved that comment.
I'm so happy he is doing better. :) Hopefully you get to move to the ward soon. And I hope you're anjoying the heat and sunshine today! :)
Oi, sou o Clausewitz e gostaria que você visitasse meu blog e conhecesse um pouco do Brasil. Abração
Hi all! Glad to hear tht Noah is doing well. God is truly Amazing!! Please know Nichole and Brad that your family is in my daily prayers.
Take care and God bless all of you!!
Hugs from Charlotte, NC
Rissa and family
Hey there...nice to see that a plan is being worked on. Hope you at least got to see the sun today. Hugs to my Bean...see you soon.
Hey, I hear you're coming home today - yay!
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