Toronto Day 21

Today was a long day spent at the hospital. Still tweaking the TPN...Noah was gaining weight over the weekend, but with the increase in lipids, his triglycerides are now too high. So the lipids have now been stopped altogether, until his level goes back down. And we had to increase the glucose, which means we are slowly losing our hours of freedom. We had to go back to 16 hours of TPN today. This still gives us a full 8 hours line free, but it is tough to give back those wonderful hours off the pump. We also started seeing some blood again from his stomach and his ph was dropping. So we've increased his pantoprazole dose once again.

And we finally have a plan...

Biopsy results today revealed nothing. Although I am told this is good news, (and I figured nothing would show up), a part of me was hoping for something to be revealed. Sometimes a definate answer is better than no answers at all.

So, the new plan is for surgery on Friday. As to what exactly Dr Wales will do...I have some idea, but will get more specific details tomorrow. And after surgery, we are to expect to be here another month or so. In light of this news, we have decided that our family cannot be separated for that long. So we are going to try to get Brad and the kids here. Still working on the financial aspects, as it is not working out to use our airmiles. But I miss them terribly and cannot imagine another month or more without them. Since school is ending, the timing is good. I'm still working on getting my head around settling in here for the long haul and giving up yet another summer. Praying this will all be worth it.