We were able to get Noah out on a pass this afternoon to go to the Royal Ontario Museum. It was fun for a couple of hours, although we all have to say that we enjoy our Manitoba Museum more. A nice break though and Noah was thrilled to be out.
Tuesday, July 07, 2009
Toronto Day 36
A good day today with some good progress made. We moved up to 5ml on the feeds tonight, so hopefully we won't have to increase the TPN again. We also discussed getting home next week. Sounds like we should be able to make that happen, although Dr Wales would love for us to stay and work on feeds here. He did say that if we stayed he thought we could make quicker and perhaps more progress here. Plus, in his own words, for his own "academic purposes", he'd love for us to stay. I think if it were up to him, we would never leave! Really, we have just had enough...we have made good progress, sorted out some issues...it has definately been worth it, but we feel like we can do the rest from a distance. So the plan will be to continue to work with the team via telemedicine. We just want to get home and have some summer to enjoy out of hospital.
We were able to get Noah out on a pass this afternoon to go to the Royal Ontario Museum. It was fun for a couple of hours, although we all have to say that we enjoy our Manitoba Museum more. A nice break though and Noah was thrilled to be out.
We were able to get Noah out on a pass this afternoon to go to the Royal Ontario Museum. It was fun for a couple of hours, although we all have to say that we enjoy our Manitoba Museum more. A nice break though and Noah was thrilled to be out.
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5 comments:
Glad you had a good day. Great to hear you might be coming home soon - hooray! We'll be praying all goes well for plans to come home.
Heather
Glad you get to come home soon!!!! Also glad that you've made such progress there, and that you got to get out today.
Praying for a great day tomorrow, and for the plans to come home.
I'm so thrilled to hear that plans are being worked on to get Noah home - not only so that you can enjoy the summer, but so that we can see you too. We'll pray that the plans will all fall into place. Hugs to my Bean...
So glad to hear you'll be coming home soon!
I happened upon your blog looking for "another" Noah, but was thrilled to read about your beautiful family, if only briefly. Your writing was a delight in that I have always advocated that we are all made of "special needs" and each and everyone in your family is now included in my long long long long....list of proving that. We are all God's perfect gifts to someone and for that we are all BLESSED! I am now BLESSED to know a few more of GOd's Creations. THANK YOU for sharing, mommateri5@yahoo.com
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