We were able to get Noah out on a pass this afternoon and so we decided to give the tower another try. There was only a 30 minute wait this time, (and I think we actually waited much less than that), so we went up.
The kids got a huge kick out of the glass floor. Noah loved crawling around it too! 
Noah, sulking, after being scolded for pulling hair...
Medically an ok day...alot of retching this morning and evening, so the feeds are staying at 5mL and we are adding Domperidone to the mix of meds. This should help his stomach empty faster. So now we are giving one drug to increase upper GI motility, and another drug (the Loparamide) to decrease lower GI motility. Interesting combination...but, whatever works! We also got Noah back down to the gym for more therapy today. He definately tired quickly, but he did well with some walking and standing practice.Plans for home are in the works, hopefully for early next week!
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5 comments:
I can't believe you let the kids lie on the glass floor of the tower! I couldn't even stand on it! Ick...heights. Glad to hear that you were able to enjoy it with the whole family. I'm loving Noah's smiles! Looking forward to having you home. Hugs to my Bean...
Ah, home! You must be so pleased to be having these conversations! I know how much you want to be able to get back home and enjoy more of the summer together.
Loved the pictures from the ROM and the tower - you picked a great day to go up. The views are spectacular when it is clear. Have you considered the Ontario Science Centre? There is an exhibit on right now called The Science of Sleuthing - or is it Spying - that the kids may enjoy. And the rest of the centre is great too. It's only a 10 minute drive from our place, and a great place for Mark to walk indoors in winter, so we have a family membership and pop over there quite frequently.
Keep us informed of your plans - I hope I can see you before you head back home. I've been wanting to give you all family time. Maybe a visit on Monday if it's not too crazy?
Praying that all continues to go well and the plan moves forward...
Alison
So glad to hear that you should be home soon!! Great pics...I'm with Kim though...I couldn't walk on it either!!
Just wanted to let you know that I check your blog every day and pray for Noah and your whole family. :) I'm so happy that you'll be coming home soon. Maybe when things settle down at home (Oh Lord, please let things settle down!) that we could get together sometime, maybe with the Gerbrandts or something. :)
So amazing to see pics of Noah free and easy...with no trailing tubes! Atta boy! Glad to see you guys get to spend some time together as a family, even if it is away from home. Praying for more progress...
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