We spent another day in the ER today. Noah's line broke again this morning...the same place it broke on Tuesday. The IV nurse did a new repair on it, and said that not near enough glue was used on the last repair. Hopefully this time will work!! So, same as last time...a repaired line, a peripheral IV to run fluids overnight, and lots of prayers that tomorrow at lunch, after the glue has dried, we will have a working line.
The good thing is that we saw our surgeon in the ER, and she took a look at Noah's prolapsed stoma and decided it was time to find some OR time to repair it. So next week we have an appointment with anesthesia to get their blessing. Hopefully we will have a surgery date soon after that.
On September 21/05 we were blessed with a beautiful son. Born with a chromosome 12q deletion (q15q21.2), the challenges were many...cleft lip/palate, complex feeding issues, developmental delays, failure to thrive, multiple infections, blood clots, asthma, sleep apnea, GI and pulmonary bleeds, TPN dependency and kidney issues. Noah embraced life and taught us how to love. On July 29/09, Noah's journey ended, leaving us on a new journey...this journey on the pathway of grief...
About Me
- Nichole
- I am mom to 3 beautiful children. I also work casual as a nurse. Our life is a crazy one, and nothing like we ever expected it would be. Yet, this journey has changed me and the way I view others. And it has helped us slow down and enjoy the most precious things in life. I wouldn't trade those lessons for anything.
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6 comments:
OMgoodness.... never a dull moment! Glad they repaired the repair! Hope they can fix Noah all up next week! :)
Bump, bump...just another bump in your journey with Noah! Here's to some smooth roads ahead for a while. Hugs to my Bean.
Holding you in prayer. Pray this time they will do it right...mom
praying for that surgery date! glad you're back at home.
We are praying that the line flushes great AND for a good visit with the sleepy doctors! :)
It's now Sunday and still no new post. Praying this is good news and everything is going well with the newest repair!
Jules
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