The details are all starting to fall into place for tuesday. We have now been told to expect this admission to be closer to the month, that was originally talked about. Our flights and oxygen are booked, leaving tuesday at 6:30am, to get us to Sick Kids by noon. Brad will stay a week, and then come home. Noah and I have return tickets booked for 3 weeks from tuesday (the 23rd), with the option to change the date if we need to. But I'm being optimistic, praying that it won't be longer than that!
Noah will be inpatient the whole time we are there. We are hoping that on the weekends he will have passes and we will be able to get out a bit. That should help break up the stay a bit.
Thank you to those who have generously offered help to us in Toronto with suggestions of accomodations. Please know it is all appreciated. We are still working out those details. I am feeling completely overwhelmed, and I will be glad to just get there and settle in.
On September 21/05 we were blessed with a beautiful son. Born with a chromosome 12q deletion (q15q21.2), the challenges were many...cleft lip/palate, complex feeding issues, developmental delays, failure to thrive, multiple infections, blood clots, asthma, sleep apnea, GI and pulmonary bleeds, TPN dependency and kidney issues. Noah embraced life and taught us how to love. On July 29/09, Noah's journey ended, leaving us on a new journey...this journey on the pathway of grief...
About Me
- Nichole
- I am mom to 3 beautiful children. I also work casual as a nurse. Our life is a crazy one, and nothing like we ever expected it would be. Yet, this journey has changed me and the way I view others. And it has helped us slow down and enjoy the most precious things in life. I wouldn't trade those lessons for anything.
Posts
7 comments:
still praying for you all...
We will be praying for all of you.
We'd love to offer some physical support while you're in Toronto. And we've sent our email already. Please don't hesitate to let us know about anything you need.
Julia and Danny
I'd also like to help. You have my email (via the DISboards). Will it be OK to check in with you at Sick Kids to see if you're OK and to learn how I can help?
Alison
Hello again - is this the right program? I was trying to find out more about it on the Sick Kids site, but foudn this on google: fhttp://www.hospitalnews.com/modules/magazines/mag.asp?ID=3&IID=89&AID=1200
I have heard such wonderful things about Paul Wales, the surgeon who co-leads this program, although we have not had personal experience with him.
Hope you don't mind me doing more research...
Alison
You are such an inspiration to me Nichole!...Praying for you and and Noah always...
Amber
Praying for all of you...special big hugs to my Bean. We love you so much.
Post a Comment