We recieved word about a date for Toronto..
They will have a bed for Noah on June 2nd...less than a week from now! We don't have much for details yet, but it sounds like the plan will be for him to be inpatient and hopefully no longer than a week for now. We should hear more details within the next day or two. Brad is planning to come too, so we need to work on finding flights and a place to stay that is within walking distance of the hospital (Ronald Mcdonald House has a long waiting list, so it is likely out). My mom will come to stay with the kids.
Lots to be done in the next week...quite overwhelming, but I am glad it is happening quickly and praying that some good will come out of it.
On September 21/05 we were blessed with a beautiful son. Born with a chromosome 12q deletion (q15q21.2), the challenges were many...cleft lip/palate, complex feeding issues, developmental delays, failure to thrive, multiple infections, blood clots, asthma, sleep apnea, GI and pulmonary bleeds, TPN dependency and kidney issues. Noah embraced life and taught us how to love. On July 29/09, Noah's journey ended, leaving us on a new journey...this journey on the pathway of grief...
About Me
- Nichole
- I am mom to 3 beautiful children. I also work casual as a nurse. Our life is a crazy one, and nothing like we ever expected it would be. Yet, this journey has changed me and the way I view others. And it has helped us slow down and enjoy the most precious things in life. I wouldn't trade those lessons for anything.
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9 comments:
Wow - that is soon. Glad to hear that it will be a short stay and that Brad will join you...that will make it a bit easier. Talk to you soon...hugs to my Bean.
Just want you to now that I'm praying for Noah.
Take care and God bless!
~Rissa
Nichole - just so you know, I am just outside of the Toronto area - if you are in need of anything during your stay here, please feel free to ask. I know we have never met, but we were apart of the same Sept babies yahoo group. Please email for anything. sandi.bates [AT] gmail.com
So glad you have a date, and glad Brad is going with you. Praying for as short a stay as possible, and that you can get some new answers!
Nichole: I'm glad you have your date, but I know it feels fast. I would prefer not to post my email here, but will send you a PM with it via the DIS. Please contact me with questions etc. I am going to think of any reasonable accommodations near the hospital if I can. Too bad about Ronald McDonald house - do they have other places where they may be able to get you a discounted rate?
I am also curious to know where you'll be at Sick Kids. I'm not really sure about all that Noah will be going through, so not sure what unit etc. Hope you'll have time to give us all some more info soon.
My helper/caregiver for Mark had surgery yesterday so I may have less time thab I hoped, but please let me know what you need.
Alison
Wow that does sound like it's happening quickly. We'll be praying for you all.
Ramona
Wow - that's fast! That's good that Brad will be with you. I hope all the planning goes smoothly and the trip itself goes well!
Hello again! I hope you read your comments! I checked out the Sick Kids website because I knew they have info for families coming to stay. You may want to check out this link:
http://www.sickkids.ca/VisitingSickKids/Staying-at-SickKids/Where-to-stay/index.html
The first 2 are closer to the hotel, have better food options.
If you explore any of the hotel options, be sure to explain why you are coming to Toronto. Hopefully they'll get you the ebst rate they can.
Ready for more questions!
Alison
That's so great that you got in so quickly. Praying that you'll find some really great accomodations and flights.
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