Wednesday, May 20, 2009

Toronto

A long day today...

This morning was a very long appointment at pre anesthesia clinic. After a lengthy discussion regarding Noah's history, the surgical risks and the need for a PICU bed after surgery, we were given the go ahead for anesthetic in the near future.

Then this afternoon at TPN clinic, our surgeon made the decision that we shouldn't be doing any surgery until we have another opinion from Toronto Sick Kids. I was told that Toronto was "now or never"...either go for another opinion if we were really serious about this, or continue palliative measures here. We've been talking about Toronto for the past couple of months. We've said no to going a couple of times, as it just wasn't good timing for us. We wanted to wait until fall...really for my own selfish reasons...

I just really wanted a break...

is it really too much to ask for???

We could be there up to a month, and Manitoba Health will only pay for flights for Noah and one parent (which will be me)...no other expenses. So, I haven't been jumping at the chance to be away from Brad & the kids, stuck in a strange hospital for who knows how long.

But...as always, if this is what needs to be done for Noah, then I will pick myself up by my bootstraps and we will forge ahead. I know that this needs to be done to make sure that we have given Noah every chance possible...it needs to be done. I just wasn't quite ready for it yet...so today took me a bit by surprise. I did give the ok to get the ball rolling and now we are just waiting on a date.

So no surgery in the near future...a trip to Toronto Sick Kids instead.

11 comments:

Kim said...

Hugs to you. It's hard enough being in the hospital in Winnipeg...I can't imagine being in Toronto. That said, you, Noah and your family have gone through so much and come through with a strength that is amazing. Know that we will pray for you continously.
PS-Is there anything I can do for you to help you out? I'm here...

Kim said...
This comment has been removed by the author.
Anonymous said...

We will really pray for you as you deal with this, and especially for God's peace as you make this decision. We love you and are here for you. mom

Anonymous said...

praying for you as you plan for Toronto, especially for peace
Erica

nicole said...

praying for you all.

Su-Ann said...

Nichole.
I have never met you, but I've had the priviledge of making use of your husband's awesome transport services recently!!! We LOVE it!!

However, my youngest brother spent a lot of his first 12 years of life in Toronto Sick kids. I pray you will have a good experience there, and great doctors! One of the things that made it bareable for him was frequent visits from people we knew. They would take him out on day passes, or just visit him. I pray that you will have people who can connect there with you, and fill the void for you.
Praying for the best for you & Noah, and your family.

Lexi said...

You don't know me as well, but I was friends with Erik and Jamie at Bible School. I live around the TO area and perhaps I could find you a place to stay for free while you are here. If you are interested, email me. piccallo13@gmail.com

Anonymous said...

Hello -I have been checking in to see that all is well, but haven't posted. We live just 15 minutes max from Sick Kids here in Toronto and it would be my pleasure to come and meet Noah and you, offer you both some support and do whatever I can to make your stay more comfortable. We've had our fair share of time there, and while no one wants to be there, we have had very positive experiences there. As the day draws nearer, please send me a PM on the DIS boards and perhaps we can connect that way.

Thinking of you,
Alison aka Twinmum, mother of Wish Kid Mark

Jules and Danny said...

If you need to seek a second opinion, then Sick Kids hospital is the place to get it. The care and attention they give to children there is amazing. I have been following your blog for some time now and while I no longer live right in the city, my husband and I live close enough to offer physical, emotional and spiritual support while you and Noah are here.
Know that there are many people who pray for your family daily. You can email me at settopass@yahoo.ca .
Jules

Christie Tuttosi said...

So many changes in such a small amount of time. Rest assured we are praying for you both. Romans 8:28, Matthew 11:28-30, 1 Peter 5:7.

Alison said...

Do you have Variety Club in your province?? They helped us with alot of extra expenses when we took Andrew to Sick Kids in 2001.