Thursday, May 11, 2006
We had a very busy week of appointments. Noah had a hearing test done on Monday. Once again he failed the right side. ENT checked out his ear tubes to see if that was the problem, but they are open and working well. Since Noah was sleeping, the audiologist decided to do some diagnostic testing and two hours later, Noah was still sleeping!! So they were able to get alot of the testing done. They confirmed that Noah definately has a right hearing loss of 50 decibals and lower. He can't hear a normal speaking voice or anything lower in that ear. Thankfully, his left ear looks good. So he will have more testing done in a couple of months in the sound booth. He may need a hearing aid in the future. This combined with his very late palate repair puts him at a real disadvantage with speech and language development. Just one more hurdle for Noah to overcome!
He was also assessed at the child development clinic who will continue to follow him every 6 months. The doctor was very impressed with his alertness and social interaction which are good signs and shows that he has alot of potential, despite his huge physical delays. So his development is very uneven but at this point they couldn't really say how well they thought he'd do physically or mentally.
Noah's had a rough week battling a cold, an eye infection and g-tube infection. Poor little guy has been mostly sleeping it off but seems to be on the mend now. His weight is up to 6lbs 13oz. Adding 1 mL of volume each day seems to be working for now.