Yes, yet another hospital post! We are still here, but we are now able to be home from 1-9pm each day. It is so wonderful to be able to come home and spend time with the family. Kailyn & Joshua are quite thrilled about this. It makes our time at the hospital much more bearable. Noah is doing quite well. We had to increase his TPN calories again because he wasn't gaining weight. So now with all the extra calories on board, he is porking out again at a whopping 9lbs 3oz!!! We are at 20ml/hr with his feeds, although we have had lots of refluxing today. Looks like it will be another week or two before we are out of there completely.
Noah is full of energy and joy and he is looking so good. His smiles and giggles have won the hearts of many at the hospital. It seems that many of our health care providers have come across this blog in their search for information on 12q deletion. It has been neat to share more of Noah with these people who have become like family over the past weeks. I've posted a few pictures of our hospital days, including Noah in his halloween bumblebee costume. He was the cutest patient! (Okay, so perhaps I'm a bit biased!)
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5 comments:
Yay! I'm so glad you posted some pictures. When Mom told me he was over 9 lbs I had to see him for myself. He looks really good! I'm glad things are going so well and I'll be praying that they will continue this way!
Oh, and thanks for the encouragement about the membrane stripping - I'm about to go out of my mind here if this baby doesn't come soon. It seems so much harder to wait this time around...
Jamie
Wooohooo! I'm so glad that he's doing better. Thanks for posting the pictures. He's getting so big. 9bls...that's wonderful! I'm glad that he's gaining weight. I'm so glad you guys get to come home for a few hours a day. That alone is a big step towards coming home for good. It's not hard for Noah to win over the hearts of the nurses and doctors. He's such a handsome boy.
Thanks for updating on cA. I'm praying for you guys!
Take care and God bless!
~Rissa and family
I was excited to check in for an update and see those beautiful photos! Lifting you all up in prayer as always.
Stefanie from Sept. Moms
Oh Noah, You look wonderful!!! The cutest litlle bumblebee I've seen in quite some time!! We love you so much and can't wait to see you at Christmas! What would you like for Christmas? I need to get to my Christmas shopping!!
Love Auntie Laura
Noah, you are the cutest bumble bee. You would look good next to Liam in his ladybug costume.
Praying that you will be home to stay!
Erin
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