We have Noah's surgery for the port scheduled for Monday around 1pm. The surgery should take about 1 1/2 hours. He will go to PICU for at least one night after the surgery and then he should be able to go back to the ward on Tuesday. Please pray that all goes well. Noah has been spiking fevers again, but his chest sounds clear, so surgery should still be a go. We are really looking forward to having this port in. No more IV starts and multiple pokes every couple of days for Noah!!
We also got the results from Noah's sleep study. He is having both obstructive and central apnea episodes as well as many hypopneas. So this likely means we will go ahead with the jaw surgeries before any palate repair. We will meet with our ENT and Plastic surgeon in April to discuss the plans.
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We ar praying for Noah, ALWAYS, and for all of you. My thoughts and prayers are always with you. We went to a Brian Doerksen concert last night. He has 6 children,a nd two of them havee fragile X. he spoke about how blessed he was to beable to see God through human weakness. When I look into Noah's eyes, I see Jesus in them. he is a constant rminder of God's incredible love for us. we lovee you, and will see you in a few days. lovee mom
Hope everything goes well with the surgery.
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