Thursday, July 06, 2006

Discouraging Week

Things haven't been going so well for Noah the past couple of weeks. He has not been well with some type of virus and went down to 7lbs 4oz when his fever was the highest. Thankfully he is gaining some back and is now 7lbs 9oz. His pediatrician visit on Tuesday was discouraging though. Seems that Noah's growth is falling even further off the growth charts. He has only grown 1/2 inch in length and head circumference in the past 2 months, not to mention his weight gain has been even slower. His average of 10 grams/day gain that he had been doing since he got over his surgeries has now dropped to about 3 grams/day (normal gain is 20-30 grams/day). The gagging and retching has continued to get worse and Noah moans and complains throughout most of his feeds. So it seems we may be at the limit as to how much more calories we can try to force into him. Our pediatrician is very concerned, but is out of suggestions. We are going to see our feeding specialist tomorrow to see if we have any other options. I guess only time will tell what the future holds for our little guy.
But those who wait on the Lord shall renew their strength; They shall mount up with wings like eagles, They shall run and not be weary, They shall walk and not faint.
ISAIAH 40:31


Erik, Jamie, Micah & Baby said...

It must be so frustrating to feel like you're taking 1 step forward and 2 steps back. I know God is still in the center of Noah's life and his health situation so we'll continue to pray that he will strengthen and encourage you for the days to come. I hope that you will still be able to make it out to BC in the next few weeks. We're anxious to see all of you!

thekeowns said...

we are praying for you Noah. Only God knows what is in store for you little guy and I know you guys have the comfort of knowing that.

Koala Bear said...

I came across your blog awhile back and just wanted to say that your family has truly been an inspiration to me. We have a handicapped 15 month old little girl named Rebecca, and I can so very much relate to much of what you have written. An entry from last month really spoke to me, where you wrote "And as much as we desire to have control and map out the days ahead, we know that we must continue to trust in God's perfect plan." Our daughter's future is uncertain too, but I know that He gave her to us for a reason and she is our special gift from God.
God bless,

Rissa said...

My family and I are praying for Noah. He's such a strong lil guy and God is taking care of HIS child. I love all the posting about Noah. I really like that picture of him in the lil dump truck. That's too sweet.

God bless you all!