
Now, 9 months has passed since his soul left this earth...

The rest of the family is keeping themselves busy as well and we are all finding ways to fill the days. Kailyn still struggles with sleeping issues, but they are slowly improving with time.

On September 21/05 we were blessed with a beautiful son. Born with a chromosome 12q deletion (q15q21.2), the challenges were many...cleft lip/palate, complex feeding issues, developmental delays, failure to thrive, multiple infections, blood clots, asthma, sleep apnea, GI and pulmonary bleeds, TPN dependency and kidney issues. Noah embraced life and taught us how to love. On July 29/09, Noah's journey ended, leaving us on a new journey...this journey on the pathway of grief...
8 comments:
I am thinking of you today, knowing that your heart aches so much for Noah, and to beable to hold him again. I am also thankful that you are giving life to this little boy that you work with. God placed you in his life, and you will offer him more than any other caregiver could. His pasrents are blessed to have you. A big thank you from me as well, to whomever sends the rose. Thank you for caring for my daughter. You are always in our prayers. love mom
yeah for running!
praying always
Thinking of you all today.
Hey darling -
I am so glad to see that you are running and have found a job fits your extensive talent and heart.
I know it can't be easy to move on each day.
What a wonderful idea - a white rose each month on the 29th. What an incredible gesture. Wish I had thought of it.
Hugs to you all! We are still praying for you guys each and every day!
Remembering Noah in a special way today, knowing how very much he is loved by his family. Remembering you too! Love to you all...
Thinking of you guys today - the white rose delivery is very cool :)
Thinking of you today...neat idea about the white rose...
Thinking about you all today and praying. The white roses are so very touching, what a sweet thing to do! Hugs and love to you all.
Beth (MouseTriper)
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