On September 21/05 we were blessed with a beautiful son. Born with a chromosome 12q deletion (q15q21.2), the challenges were many...cleft lip/palate, complex feeding issues, developmental delays, failure to thrive, multiple infections, blood clots, asthma, sleep apnea, GI and pulmonary bleeds, TPN dependency and kidney issues. Noah embraced life and taught us how to love. On July 29/09, Noah's journey ended, leaving us on a new journey...this journey on the pathway of grief...
Monday, September 19, 2011
Life Changes
Much has been happening in our lives these days. We spent a wonderful 2 weeks down in Florida. We were able to do some volunteering again at Give Kids The World, which we loved! And Kailyn was able to deliver all of the items she has been collecting to donate. (More to come about that in another post). After our time spent there, we met my sister and her family in Disney and spent a fabulous 9 days at the parks together. We will be heading back down there in November to do some more volunteering and this time try a short Disney cruise. Yes we love that place, but there is more to the story... For some time now, we have been feeling unsettled. Our lives have felt in this "limbo state" for so long and we feel like there is more that we need to be doing. Noah has inspired us to step out of our comfort zone and give back...to make our lives count for something and leave a legacy we can be proud of. After much thought and prayer...many nights of wondering...and waiting on God for guidance, we have come to a major life decision. And since it went public in the paper here on Friday, it is time that I share it here too... http://www.gktw.org/news/press/09-08-2011-volunteer-moves-to-help-gktw.asp
So many wonderful memories are tied up in GKTW. Our hearts will always be a part of that place. There is much that will still need to fall into place for this vision of ours to become a reality, so the articles may be a bit premature. It is exciting and terrifying all at the same time, and we really don't know how, when or even if it will all fall into place. But the paperwork ball is very slowly rolling and we are trusting in His perfect plan and guidance in all of this. I have much more to share about Kailyn and the passion and generous heart she has developed for GKTW, but I will save that for another day, for that deserves a post dedicated just to her. Noah, your life had a purpose and your legacy lives on. I can only hope to live my life with even half of the courage we saw in you. You are my inspiration. Missing you...
Don't forget to read my last blog post and consider donating to the Children's Wish Foundation Walk for Wishes.
1 comment:
Anonymous
said...
We will miss you so much, but are so blessed by what God is calling you to do. I hope to be spending lots of time in Florida in the future. Love mom
I am mom to 3 beautiful children. I also work casual as a nurse. Our life is a crazy one, and nothing like we ever expected it would be. Yet, this journey has changed me and the way I view others. And it has helped us slow down and enjoy the most precious things in life. I wouldn't trade those lessons for anything.
1 comment:
We will miss you so much, but are so blessed by what God is calling you to do. I hope to be spending lots of time in Florida in the future. Love mom
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