Last night Noah spiked a fever. He was plain miserable this morning with a fever of 102 and very pale. I was getting worried, so I decided to take him to the pediatrician. Turns out our little guy has pneumonia. He is on antibiotics now and we are hoping to be able to treat this at home. If it gets any worse we will be off to the ER. Pray that he will be able to fight this off quickly.
We are also having a terrible time with granulation tissue building up around his g-tube. Not really much we can do about that and we are told we may always have to deal with it. It's not very comfortable for him and he really doesn't enjoy us cleaning around his tube. I'm experimenting with using tea tree oil right now to clean it, but so far it's not doing much.
On September 21/05 we were blessed with a beautiful son. Born with a chromosome 12q deletion (q15q21.2), the challenges were many...cleft lip/palate, complex feeding issues, developmental delays, failure to thrive, multiple infections, blood clots, asthma, sleep apnea, GI and pulmonary bleeds, TPN dependency and kidney issues. Noah embraced life and taught us how to love. On July 29/09, Noah's journey ended, leaving us on a new journey...this journey on the pathway of grief...
About Me
- Nichole
- I am mom to 3 beautiful children. I also work casual as a nurse. Our life is a crazy one, and nothing like we ever expected it would be. Yet, this journey has changed me and the way I view others. And it has helped us slow down and enjoy the most precious things in life. I wouldn't trade those lessons for anything.
Posts
4 comments:
I'm praying for you guys today!
we are praying too!!
yesterday, while I was praying for noah, I remembered the verse in John 10:10-the thief comes to steal. kill and destroy, but JESUS came, that we might have life, and have it to the fullest. I felt Noah's pnemonia was an attack from the enemy, and so we did some spiritual warfar, and once again, God came through. what an amazing GOD!!
I will pray for your familuy today and little Noah. Babies are so precious and it is tough to see them in pain. I hope you are all doing okay and I wish the very best for you all.
Post a Comment