Still in Hospital

Noah is still in hospital and is awaiting surgery to put in a port for IV access. We hope to have an OR time soon. He has also been battling a chronic sinus infection that we are trying to clear up with IV antibiotics. The good news is his pneumonia is cleared up and his chest sounds great. We have switched him to a new formula called Tolerex which is living up to it's name and he is tolerating it well.

In the Hospital

Many of you check this site to be updated on Noah's wellbeing. He and Nichole have been back in the hospital since last Saturday. He is recovering from another pneumonia. Although slower than we would like, it has been an exercise in patience and faith. It has been a long week for everyone. Nichole is not feeling well but continues to stay with Noah all the time. Joshua and Kailyn are unfortunately used to the chaotic split personality of our family life and continue to be great kids to parent in these times. For me it just a matter of keeping all of the wheels turning.

Please continue to pray for Noah and our family. We all know full well the power of prayer and the goodness of God.

Brad.

Sleep Study

Wednesday night was Noah's sleep study and it went well. By the time he got hooked up to everything, he was very tired and fell right asleep. How anyone can sleep hooked up to so many things is beyond me! We did the first half of the night without oxygen and then added oxygen for the second half. We should get the official results within about a week. But it looks like he has central sleep apnea, rather than obstructive sleep apnea. (So it is his central nervous system that causes him to stop breathing, rather than his tongue obstructing his airway). This is both good and bad news. The good news is that he likely won't need any jaw surgeries since it's not his tongue causing the problem. The bad news is that this problem can't be surgically fixed and he will have to continue to use oxygen for sleeping. It was quite fascinating to watch and we learned alot about sleep.






I'm also back at work now and survived my first two shifts. Things all went really well both at work and here at home. I really enjoyed it and it was a very nice break for me! I'm looking forward to getting out once a week!
We also have a surgery date: May 11th at 12pm. Only 3 months away!!