Wednesday, August 20, 2008

Weekend at the Cabin & Tube Woes Again!

Noah has been doing well since discharge. He is now on Ancef IV until mid September which will hopefully help to keep him out of hospital. And once the antibiotics are done, we are hoping to try ethanol locks in his central line. It feels good to have some plan of action to hopefully try to break this vicious cycle of infections. No guarantees that it will help, but it's worth a shot.

We were able to spend a wonderful weekend at my parent's cabin at Lake Metigosh. The weather was perfect and we spent lots of time out on the boat. I forgot my camera, so I don't have any pictures to post, but hopefully you can email me some, Mom. This week the kids are at Vacation Bible School here in town and we are slowly getting back into school mode. Still have a couple of elusive school supplies to buy, but for the most part, we are all looking forward to September!

And now today Noah's GJ tube came out...again! It's becoming a huge frustration and I just don't know what we can do differently. He is just so busy and constantly tugging at those lines. I wish we could somehow super glue that thing to his stomach! His stoma is still a bit of a mess with yeast (we've been painting it with Gentian Violet), which doesn't help the situation. So tonight we will just run fluids through his central line and tomorrow afternoon Noah has an appointment to have it put back in. No, we are not very popular with the radiologists!

1 comment:

Jamie said...

Oh little Noah must be so busy - there's probably not many 3 year olds who would keep something attached to them all the time like that :)

I remember when Micah had to have gentian violet for his thrush - so Noah must have a perma-purple belly these days!