Another quiet day...overall a good day with baby step improvements. After continuous IV ventolin infusion and a ton of steroids, Noah's lungs are finally opening up and the ventilator is able to do it's job. He is spending alot of time coasting on the vent (allowing it to initiate his breaths for him), which is a good thing for him right now. Blood gases are improving and the plan is to try to wean down the IV ventolin overnight. His secretions came back growing Adenovirus, so we have an answer to the nasty culprit that sent Noah into this downward spiral.
He recieved another blood transfusion this morning, as his hemoglobin continues to drift down. He is still puffy, but getting rid of lots of excess fluid with the Lasix...all good things for those lungs. We started a teeny bit of pedialyte running through his gut, but his abdomen is hard and distended. It's no use in trying to feed him right now, so we are starting TPN to get some nutrition into him. Potassium is still a big issue, and he is needing crazy amounts in his IV maintenance fluids. His heartrate has been a bit irratic, but that may be due to our potassium jumping around so much.
I've allowed myself a bit of a pity party today over Christmas plans...looks like we are settling in to spend Christmas in the PICU. Yes, it's just another day, but still so hard to be here this time of year...listening to those around us planning their dinners and gatherings. Thankfully, our kids are quite happy where they are, even though it's not the Christmas they had anticipated...and Noah is with us...that is what's most important.
Once again, I am overwhelmed...so much love and prayers from so many...many of you who know us only through a computer screen. Please keep the prayers and comments coming...they are what sustains me in these long days.