Friday, April 10, 2009

PICU Day 3

A quiet day here, which is what we more bleeding...Noah is content on his CPAP. We did try about a 1/2 hour off the CPAP today. Noah did fairly well, but was definately working to breathe by the end of the trial period and his sats began drifting down. But it is a good start to weaning, and hopefully tomorrow we can do a longer period off the CPAP. There is more serious talk once again about the need for CPAP at home. It obviously seems to help Noah so much...perhaps having him on it at night would allow his lungs some rest, give him more daytime energy and hopefully improve his overall respiratory status. We have some doctors advocating for us, however, he does not fit the normal criteria for home CPAP, so it seems there may be some hurdles to get past. However, we are getting quite used to jumping through all the hoops to get Noah what he needs.

So we are settling in for the long weekend...the kids get to have Easter with my parents...for which I am grateful. But once again, our family is separated for another holiday and I can't help but feel disappointed, knowing that we are missing out on so many memories we will never get back.


Anonymous said...

Hi Nichole,
Glad to hear Noah is doing better, and also sad for you that your family is not together. Praying that the Lord will hold you close and encourage you today.

Amber Greenawalt said...

I just wanted to stop by and wish you a blessed and happy Easter. Sending many prayers your way!


Anonymous said...

Wishing you a Happy and Blessed Easter in spite of being in the hospital again. Glad to hear that Noah is doing better. Love and Prayers, Grandma L.

Anonymous said...

When I think of al the hurdles yo have had with Noah, and how God has always opened doors for him, we know that he will also answer this prayer to have the CPAP at home. We are praying specifically for that. The kids are having a great weekend with their cousins, and they will be comng back with Joel and Laura Monday morning. Maybe we will talk tomorrow. mom