Sunday, April 12, 2009

PICU Day 5 ~ Easter Day

A rainy, gloomy Easter day actually seemed quite fitting. It is always easier to be here when there is not a beautiful sunny day beckoning outside the window. Another good, quiet day...Noah spent the whole day off CPAP and is back on for sleeping. He did great and he was back to his charming self, flirting with the staff and showing off all his tricks. He had a small episode of coughing up some bloody sputum this morning, but it never amounted to anything more than that. Surgery came by to talk about scoping Noah, however, we are hoping to just leave well enough alone. Right now no definate plan...just waiting this out. We are so thankful this Easter day...thankful for a gracious, loving, heavenly Father...thankful for another miracle in the life of our little one.


kimmylaj said...

glad to hear that noah is hanging tough. i have said it before but he truly is an inspiration as are you. this week my daughter had eye surgery, and has had a lot of problems resulting from it including fever and beginning dehydration and i am just so stressed, i have had 5 doctor appointments since thursday trying to figure out what is going on with my poor part time lethargic/ part time screaming in pain little girl. Each time i am brought to tears i think of all the families that i have read about taking wish trips. i must say that between you and amber , you give me strength and courage, i know that this is such a minor blip on the radar, and what noah is going thru is so stressful.i just wanted to let you know that i think you are a wonderful advocate for noah, full of strength , hope, and prayers, always trusting, optimistic and strong, i just wanted to let you know that i admire you. i do not know you but thru this blog and the disboards but you truly are an amazing mom and family. God bless you always. and thank you! kim

Verna said...

Prayed for you lots today.