"You keep track of all my sorrows.
You have collected all my tears in your bottle.
You have recorded each one in your book."
Psalm 56:8
On September 21/05 we were blessed with a beautiful son. Born with a chromosome 12q deletion (q15q21.2), the challenges were many...cleft lip/palate, complex feeding issues, developmental delays, failure to thrive, multiple infections, blood clots, asthma, sleep apnea, GI and pulmonary bleeds, TPN dependency and kidney issues. Noah embraced life and taught us how to love. On July 29/09, Noah's journey ended, leaving us on a new journey...this journey on the pathway of grief...
About Me
- Nichole
- I am mom to 3 beautiful children. I also work casual as a nurse. Our life is a crazy one, and nothing like we ever expected it would be. Yet, this journey has changed me and the way I view others. And it has helped us slow down and enjoy the most precious things in life. I wouldn't trade those lessons for anything.
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14 comments:
Nichole,
I don't know you personally, but stumbled across your blog a couple of years ago and made it part of my morning routine. Noah's strength and determination was amazing to me, and loved reading about him. His cheeky little smile was a winner too :o)
My heart is just broken for you - I truly cannot imagine your loss, but please know that I think of you and yours on a daily basis, and am rooting for you all.
Take care, and stay strong.
"Where is Noah?" Thank God that we do know where he is, even now and that we will see him again. We weep with you and pray that God will continue to give you comfort and strength for each moment and each day. Thanks for sharing your memories and pictures. Love, Mom L.
That you for sharing Noah's smile with us.
My heart aches for all of you as you miss Noah, and learn to live a new "normal". I miss Noah too!
We continue to pray for you and your family. Love to you all...
Aww Nichole, thank you for sharing another video of Noah. His smile just captures my heart each and every time!!! I pray for your family every day!
Hugs!
Beth
Nichole - thank you for sharing this cute video, reminding us of Noah's magical smile. Just wanted you to know that I check here every day, thinking of you and knowing that your faith is seeing you through. May God give you strength.
Alison
It is wonderful seeing all the videos of Noah.and remembering the smiles and laughter. He knew how much he was loved, and I believe that is why he was always so content. May God be your protector, your sustainer, and may He make His presence very real to you during this difficult time.
"I am persuaded that neither death nor life, nor angels, nor principalities nor powers, nor things present nor things to come, nor height nor depth, nor any other created thing, shall beable to separate us from the love of God, which is ours in Christ Jesus my Lord" Romans 8:38&39
The same Jesus that is looking after Noah, is the one that indwells our hearts. Praying always without ceasing. Love mom
Hi all! Love the video of Noah. I'm continuing to pray that you all find comfort in Jesus. I still come here everyday to look at his pictures:). Never knew him personally but I do miss him.
God bless you all!
~Rissa
So cute. I'm sure you'd give anything to see him smiling at you like that forever.
I am thinking of your pain every day and praying for strength...
adorable video.
Liam has watched it over and over again.
praying for strength for you for everyday
i still run into people everyday who are just reading Noah's story now and lives are changed because of it.
always praying
Hi Nichole & Brad,
Was thinking of you as you reach the one month anniversary of trying to figure out how to go on without a very special person in your life. Your grief must leave you so exhausted and these typed words can hardly help. As you continue on this different path for your life, please take care of yourselves - physically, emotionally and spiritually. It was said to me once that a couple losing a child is one of the most difficult things they can go through. Men and women grieve so differently and it's sometimes difficult to deal with that as well. I pray for you guys and for your kids - they must be experiencing all sorts of emotions and finding a way to deal with everything so different as well. You posted your thank-you's perfectly - no need for anything else - take time to rest (if you can!). I'm so glad you have so many wonderful friends and family around you. I pray that they continue to support you long after the funeral....that's when more hard stuff begins...figuring out how to grieve and how to carry on.
Your WBI friend,
Anita
Nichole,
I found myself thinking of your Noah, and all of you, and came to check here, as I seem to just about every day. If I am thinking of that bundle of joy this frequently, I imagine that thoughts of him are with you constantly. While recalling happy memories can bring back joyful moments, I am sure there is also much pain.
Your friend Anita expressed another wish for you that has also been on my mind - for family and friends to stay with you and support you for the long haul. I remember when our twins were first born, so very prematurely, there was such a flurry of good wishes and support and then, well, slowly people dropped away, not knowing what to do or say. We could always rely on family and we soon learned who our truest friends were - and are - for tey have stayed with us throughout the years as we have adapted to dealing with Mark's disability and so on. Based on all that I have seen on this blog, I am confident that you will have wonderful support for the difficult times ahead.
Thinking of you, and wishing there was more I could do but pray and post...
Alison
Thank you Anita and Allison for posting. I am Nichole's mom and it has been amazing those people that are in it for the long haul are often the ones that you would least expect.The lesson that I have learned from that is to pray for a discerning heart.And to ask God to point me to those people who need a hug or a word of encouragement, or even to share some tears together. If only more people would realize that a hug, or a simple touch is worth more than words.
Dear Nichole,
I have been thinking about Noah all day. I know tomorrow marks one month since you lost Noah and I can only imagine how hard the day will be for you, just as each day has been. Please know that you all remain in my heart and prayers. I know I never met Noah, but I find myself missing him so much. You will never know how much your sweet son touched my soul. I just fell in love with him. He was such a fighter and an amazing little boy, I know he had to have gotten that from you and Brad. In my eyes Noah is a brave little hero and I will never forget him. I am so thankful that you continue to share your memories of Noah with all of us. I hope that never ends. I love seeing the videos and pictures of Noah. He always looked so happy and that smile...oh my that smile just melted my heart.
Please know that you are always in my thoughts! You have a friend in me.
Hugs!
Beth (aka MouseTriper)
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