Noah had his scan done today, which came back clean. So he was officially discharged this afternoon and we are home again! Noah is looking great and we are so happy to finally be home! He will be on IV Cloxacillin every 6 hours for another week and then we are going to try giving prophalactic Septra three times a week (an antibiotic through his GJ tube). This will be in the hopes of preventing infections. However, there are risks of growing "superbugs" with long term antibiotic use that would be much more difficult to treat. We are going to give it a try for now though.
Our ID doctor today told us that there is a 50% chance of this Staph infection reoccurring in this line. Not great odds, but hopefully we will get a bit more time out of this line yet before we will be forced to change it.
On September 21/05 we were blessed with a beautiful son. Born with a chromosome 12q deletion (q15q21.2), the challenges were many...cleft lip/palate, complex feeding issues, developmental delays, failure to thrive, multiple infections, blood clots, asthma, sleep apnea, GI and pulmonary bleeds, TPN dependency and kidney issues. Noah embraced life and taught us how to love. On July 29/09, Noah's journey ended, leaving us on a new journey...this journey on the pathway of grief...
About Me
- Nichole
- I am mom to 3 beautiful children. I also work casual as a nurse. Our life is a crazy one, and nothing like we ever expected it would be. Yet, this journey has changed me and the way I view others. And it has helped us slow down and enjoy the most precious things in life. I wouldn't trade those lessons for anything.
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1 comment:
thank you Jesus. We are so glad you are home, love mom
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