Our team meeting on Monday went well. It was decided that we will try to save this line as long as possible since we now have negative cultures and our one lumen is working well. And the general conclusion from everyone was that Noah is line & TPN dependant for the present time. The risks and complications of having the line are high, but when you see the energy, the development, the weight gain and the increased comfort level for Noah on TPN, it's difficult to justify going back to just tube feeding. Without his line, Noah likely wouldn't have much of a chance at life if he can't absorb nutrients, fat and sugar properly. So even though the line complications could potentially end his line too, it still seems like his best chance. We've never really figured out exactly what is wrong with Noah's gut and why we can't make it work normally. All the tests and xrays we've done have come back normal. So on paper, it looks like there is absolutely no problems, and yet things just don't work right.
So, hopefully the news will be good tomorrow and we will be out of hospital and home for Thanksgiving. Thank you to all for your continued prayers and support. Even though we may not say it enough, we appreciate the visits, the coffees and treats. These gestures mean so much to us!
Jesus love me this I know
For the Bible tells me so
Little ones to Him belong
They are weak but He is strong
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4 comments:
Glad to hear that things are looking up for Noah. I hope you guys get to go home tomorrow. Congrats on the weight gain. May God continue to bless you all!
~Rissa and family
The song Jesus loves me runs through my head so often lately. I'll think of you guys now when it does. Trusting with you in the One who holds all our tomorrows.
We are praying for yo buddy. We love you guys, and trust that God, who knows all things, and holds everyhting completely in His hands has a plan and a purpose in all you have gone through. He is our refuge and our strength. mom
Praying for you and hope that you are home for Thanksgiving.
Was reading your post below and many at time before surgery I was given drugs to relax me before going in and it had the reverse affect. LOL sometimes with some bad results (at 13 I almost punched my Dr.). But lorazepam was one of them and it got me so hyped up that it made things worse.
Erinne
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