Rainbow

We have made it through a tough week here at home, each day expecting that we would have to take Noah in and not knowing how things were going to go. The ups and downs are so difficult and I find it even worse than if he would just get sick quickly, get admitted and get it over with! How crazy that sounds, but living in this waiting with our bags packed is just as awful. However, it looks like we may have actually waited this thing out! The Septra must be doing something, because Noah is much improved since yesterday. Still has a bit of a nasty cough and I'm wondering if perhaps this may have been RSV he's been fighting or maybe a viral pneumonia. But whatever it is or was, things are finally looking up here and I think we can actually see the rainbow peeking out of this lastest storm! I may even be able to unpack today! His stoma sight is looking really bad lately too because of all the coughing and extra drainage. So we are stopping his tube feeds for now and will reassess next week as to whether we will start them again.

Noah spent most of the week sleeping on the living room floor and the kitten rarely left his side!

Kailyn & Joshua are really looking forward to Halloween so I am so thankful that it looks like I will be here with them tomorrow. Brad is leaving for a conference in Florida tomorrow as well, so my mom is coming to be my backup help! Oh how I wish Noah was stable enough that we could go with him! Hopefully we have a quiet week around here while he is gone.

We did manage to take the kids to Boo at the Zoo on Thursday. It was a beautiful night and everyone oogled over Noah. Although as you can see from the pictures, he didn't look so great. He was quite fascinated by it all though!