Tuesday, December 23, 2008

All I Want For Christmas...



Erin...words cannot express...thank you!

A wonderful day with leaps and bounds of progress...thank you God! Still trying to wrap my head around all that has happened, but I feel as if I can finally exhale today. We were able to wean completely off the IV ventolin and he is handling just the inhaled ventolin very well. We were also able to wean his vent settings...he is now doing the breathing, with the vent there just to give him some support. Huge steps forward...Noah is showing readiness to try breathing on his own, however, he is still so profoundly weak. The question being...does he have the strength yet, or will it be too tiring for him.


But the new goal...extubation for Christmas!!


TPN was finally started today for nutrition...potassium is still proving to be difficult to maintain, requiring multiple boluses...heartrate is still irratic. He has lost alot of the excess fluid and is looking more like Noah again. We miss him terribly...slowly we are seeing glimpses of our feisty boy. Can't wait to have him back.

So thankful...so very thankful...

6 comments:

Anonymous said...

GOOD .NEWS!! Tomorrow we will celebrate the birth of our King. His coming brought good news to this earth, and it still does. His ways are powerful, and we cannot even begin to fathom his goodness. We are praying for all of you. The kids are fine, and anticipating the excitement of Christmas(especially the presents) Many hugs and prayers from us here. Give noah an extra hug from us. love you so much...mom

Anonymous said...

What wonderful news! We will continue to keep Noah in our prayers!

Carol- aka oklamomof4boys

Anonymous said...

Yeah, Noah!! I am so happy for you guys. What a great gift our Lord would give you guys this Christmas! Thank you so much for sharing your story with all of us. What an inspiration you all are!

Thank you for the update! We are still praying for you guys!

Kim said...

Awesome to hear. I was happy to see you and Noah yesterday. Praying for a smooth extubation. Wishes for a Merry Christmas for you and your family.

Anonymous said...

Praying with you and for you. Have a blessed Christmas...from a mom in Calgary with a special little boy too.
www.caringbridge.org/visit/connorv

Anonymous said...

So glad that things are slowly moving in the right direction - praise the Lord! But I hurt for you knowing that your family is separated at Christmas - so sorry you're not able to celebrate together with Kailyn and Joshua. I pray for the Lord to make his presence very real to you, to give you comfort and joy that can only come from Him.

Heather