Tuesday, February 10, 2009

Day 7

Still here...

We've been able to come down to 2Litres on Noah's oxygen, but seem to be stuck there. We are waiting to see respirology to re-evaluate what is going on and what our plan should be. Still hoping that we can wean Noah off the oxygen soon, but that may not happen as soon as we'd like. So talk today is of the plans that need to be put into place in the next two weeks for our trip to happen...he may need continous oxygen while we are there. Our other issue is that I also thought that we had things organized with the airline and our oxygen use, however the airline is trying to make things more complicated. So between the airline, our home oxygen provider, respirology and the wish foundation, I am getting nervous about the last minute details that need to be ironed out between them all.

Seems all a bit overwhelming today and wishing it could just be easier...probably doesn't help that I am so beyond tired. Praying that we will be able to wean him before our trip, and that the travel issues will get sorted out.

4 comments:

Kim said...

My heart is heavy as you sit in the hospital waiting for Noah to rebound and as you wish you could plan more for your trip. God is right there with you, Nichole. His hand is upon you and your family and He hears your cries! Hugs for you and my Bean!

Anonymous said...

Yes, we are praying too. God has done miracle aftermiracle for noah, and we are believing he has another one right around the corner. We will pray, and I will put out a prayer chain, also to our Pass Christian group. mom

Jamie said...

We'll be praying for all the details to sort themselves out. God is really good at that sort of stuff :)
Thinking of you guys lots...

Maroo said...

Just stopping in to say hello!

I am a little confused, because I thought I already posted a comment to this post? I think I have read it about 5 times! lol

Anyway...still praying for precious Noah and wondering how he is doing! :)