Thursday, February 12, 2009

Day 9

Finally...we have a plan!!

A frustrating day yesterday, as it seemed we were not getting any closer to discharge planning...but finally we have a plan for home tomorrow!! Noah has done a fabulous job of weaning off the oxygen, so no daytime oxygen!! The respirologist was shocked when she came to see us and saw that he had weaned from 2 Litres to room air in one day. So thank you for all your prayers...those lungs are healing, and we don't have to worry about continuous oxygen for our trip. Tonight we will do an overnight oximetry study to reassess his oxygen needs for sleeping. Our home prescription has been left pretty wide open for us though which is good...we will be taking a sat monitor home, and depending on his sats, we can use his oxygen for night and as needed during the day.

We will finish out Noah's 7 day course of Prednisone at home, and his IV antibiotics, which will finish the day we are scheduled to leave for Noah's wish trip. We will then start him on a prophylactic antibiotics three times a week. His lungs still don't sounds great, and our pediatrician was a bit hesitant about discharge, but they are no longer doing anything for Noah here that we can't do at home.

Brad brought the kids to the hospital yesterday and we opened 2 big give packages we had received in the mail. What a bright spot that was for us and so much fun!! I will post pictures once I am home. Slowly things are falling into place, and we are feeling much more optimistic about this trip actually happening. Still airline issues to work out, but I will wait until we are home to tackle that project. I am exhausted today...Noah is bored silly...we both can't wait to be home.

11 comments:

kimmylaj said...

that is so wonderful to hear.

The Keowns said...

wonderful news!!

Anonymous said...

How great is our God!! will call you tomorrow night. We arrived home late this afternoon...mom

Anonymous said...

praying for energy for you, Nichole, and for continued healing for Noah´s lungs
Erica & Wayne

Carol said...

What wonderful news! We will continue to pray for him- and for all of you. I am praying for a wonderful, peaceful night of sleep for you.

Carol ( oklamomof4boys)

Kim said...

Awesome! Glad to hear that things are falling into place for discharge. A home SAT monitor...who did you bribe? lol! Hugs to my Bean.

Lexi said...

Hi. You do not know me. I was friends with Erik and Jamie at Bethany. I started reading your blog from Jamie's and I have been so encouraged by your journey. The strength you show and talk about feels so strong and it shows just how much we can rely on God. Its a good reminder to us all. I wish you and your family all the richest blessings. You truly deserve all the happiness. You will be rewarded one day!

Maroo said...

Yeah! I have to admit, I was starting to worry about that little guy!

I am so thankful that his O2 sats are getting better! And it sounds like everything is on pace for your AWESOME trip!!!!

teresajoy said...

I'm so glad you you have plans to go home tomorrow!!! I'm sure you will be relieved to get home!!!

Alison said...

Hi Nichole, the Pooh outfit and water bottle holders were from me. I thought I put a little note in there somewhere!! Anyhow, hope the outfit fits and everyone enjoys their treats.

Alison - Andrew's mom
www.andrewsbravejourney.blogspot.com

on disboards:visitingapril09

Jamie said...

That's great news, Nichole. Praying things go smoothly as you plan for your trip now!