Noah has done so well off the CPAP, so yesterday evening he was moved to the ward. So we are once again on CH5 and doing well. I am hoping this stay won't drag out too much longer. He is still requiring 3 Litres of oxygen continuously, but hopefully he will start weaning soon. His prolapsed stoma is a big concern right now, but nothing surgically can be done until his lungs have improved. It is driving both Noah and I crazy. He's got yeast growing in the site too, so it is a constant source of discomfort for him. Trying to keep the skin breakdown to a minimum is going to be a great challenge in the days to come.
We are so thankful for the huge improvements over the past few days. Hopefully once the weekend is over, we can get a plan in place for discharge.
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7 comments:
Yippee..so glad that you are on your "home" ward. Praying for short remainder of the stay. Sorry, I didn't get to see you on Friday...I was busy with work. Hugs to my Bean...
Noah looked so good today. I will be praying for a short stay , and also for his stoma site, that Jesus would heal that too. God has done so many miracles this past week, Praise His name. mom
I'm glad to hear you are back on the ward - surely a sign of progress. Praying that you will get home soon!
Alison
Wow!! Sounds like things are looking up for you guys! Praise God!!
We are still praying. Hang in there. One step closer to home. :)
so glad to hear that your little fighter is doing so much better . i hope you both are home very soon
yeah! so glad that he is back on his ward. One step closer to home
Hey Nicole! It's Dawn's sister Maggie... just reading your blog. I like to keep updated on your little boy. He's looking so much like Kyle! We're learning about heart defects in my restoration class right now and it's really making me think about how courageous your family is! Keep it up and I hope you guys can get home soon!
-Maggie
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