Home again...
Noah was discharged yesterday, so we are finally all home!! Praying we can stay home for a while. His stoma is still quite bad, so we pulled his g-tube out and are just doing dressings with Flamazine in the hopes that we can get the skin around it to heal. There is so much mucosa that has prolapsed, that it will likely hold the hole open until we can get it repaired. He is unable to have surgery until the RSV is well behind him...not until closer to the end of April. So for now, we have put an NG tube in to drain his stomach. He is very tired today...not quite himself. Hopefully he is still just recuping.
It is so good to be home...a bit overwhelming as there is still suitcases to unpack and so much to catch up on...but at least we are home.
On September 21/05 we were blessed with a beautiful son. Born with a chromosome 12q deletion (q15q21.2), the challenges were many...cleft lip/palate, complex feeding issues, developmental delays, failure to thrive, multiple infections, blood clots, asthma, sleep apnea, GI and pulmonary bleeds, TPN dependency and kidney issues. Noah embraced life and taught us how to love. On July 29/09, Noah's journey ended, leaving us on a new journey...this journey on the pathway of grief...
About Me
- Nichole
- I am mom to 3 beautiful children. I also work casual as a nurse. Our life is a crazy one, and nothing like we ever expected it would be. Yet, this journey has changed me and the way I view others. And it has helped us slow down and enjoy the most precious things in life. I wouldn't trade those lessons for anything.
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8 comments:
Home!!! Yeah!!! Hope he starts to feel more like Noah soon!! We r still praying! :)
Oh Nichole. Praying for energy and health for all of in your home... So glad you're home. Together.
Ramona
I'm glad you guys are home - but I heard Noah wasn't feeling too hot this morning :( Hope it doesn't escalate into anything.
Tell Kailyn she may just have a new cousin on her birthday if this baby doesn't decide to show up soon!!
I am glad you are home! Hopefully life will be back to normal soon. We will keep you all in our prayers!
Carol ( oklamomof4boys)
Hooray for home! So glad to hear about Noah's discharge - and may it stay that way, I pray. I am sure you are all so happy to be back together. It's time to relive your best Wish Trip memories. I hope Winnipeg is having some of the great weather we've had in Toronto so you can fianlly get out and enjoy some time outdoors.
We'll be praying for continuing improved health and peace for you all.
Alison
Yaey, (that's not how you spell it), but we're happy you can be home again. Praying Noah can feel better soon.
Erica
so glad that you and Noah are home...praying that he stays well. Enjoy our day, my friend. Hugs to my Bean.
I was just thinking about you guys! Still persistently praying for you all.
Hugs,
Maroo
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