At my 20 week ultrasound we discovered that the baby boy I was carrying would be born with a cleft lip and palate. An amnio revealed that he also has an extremely rare chromosome deletion (12)(q15q21.2). We were told that our baby would probably be stillborn or have severe problems at birth. We went for biweekly fetal assessments and the baby was growing very slowly. We were prepared for the worst but praying that we would have the chance to spend some time with our son.
After a very long stressful pregnancy, on September 21st, 2005, at 39 weeks, Noah Grant John finally decided to make his appearance. He was born kicking and screaming at 8:35pm, and breathing on his own! We were thrilled! He had severe IUGR, weighing in at 3lbs 12oz and 17 inches long. He was immediately wisked off to NICU at Children's Hospital which would become his home for the next month.