Other than some cruddy cold symptoms, Noah has stopped having the low grade fevers, so it looks like I may actually be able to unpack some bags for a while. His last day of antibiotics is today, so we will see what happens. We will restart the oral Septra tomorrow. However, again today he had a reaction to the Amphotericin with screaming, spiking fever, rigors and mottling. I talked to the pharmacist today, who suggested that we try premedicating with Tylenol and Benadryl before the next dose on Friday. Hopefully that will help his comfort level. He still has 2 weeks of the Ampho left to go. Tomorrow he will have all his bloodwork done and we have TPN clinic as well, so we will see how his electrolytes and his kidneys are doing with all of this. In the midst of all this, I am trying to get our Christmas preparations done, so things are quite busy. Can't complain though...how wonderful it is to just be home and sit down in front of the computer with a cup of coffee...to tuck the kids in bed at night... to sleep in my own bed!! A huge thank you to all of you who have provided us with meals and goodies. You don't know what a lifesaver that has been!
I've added a couple of pictures of Noah in hospital with his home care nurses, Doris and Nicole, who we love! I don't know what we'd do without them!!
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3 comments:
I am so happy for you Nichole, the things we often take so for grnated, like sitting down with a cup of coffee at the computer. So glad you are home, and praying you can all be together through this whole Christmas, and what a miracle that you are able to care for Noah at home. We pray that can continue for a long time. Love you guys Love mom
I'm so happy to hear that Noah is home and doing well. I pray that he stays home for a very long time and that you all have a very blessed and wonderful Christmas.
~Rissa
so glad he is home!! we are looking forward to christmas and praying he continues to stay out of the hospital so you can enjoy the holidays
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