And So it Goes...

The laundry's been tackled, the suitcases finally unpacked and we are settling back into regular life again (as regular as summer life can be). This week has been a busy week of appointments and reordering supplies. If it wasn't for the bit of color we all managed to get, I'd think we'd never left! The Manitoba TPN program has switched to a company in Calgary called Calea, who will now provide all our TPN and supplies. I have talked extensively on the phone with them and we will recieve our first shipment from them next week, so hopefully the transition goes smoothly for us. I also brought up a couple of new ideas from the Oley Conference at TPN clinic today. Didn't get a great response, but I'll continue to ask the questions, and hopefully with some more research into it perhaps someone will be willing to try something new.

Now, here comes the drama...because of course, we can't seem to go long without it! Apparently Noah is now capable of pulling himself up to a standing position in his crib and actually flip himself out! Yes, after putting him to bed this evening, I heard a thump...then screaming. Ran upstairs, and Noah is sitting on the floor beside his crib. He seems no worse for wear, but the worst part is that his fall pulled his GJ tube out. The good news is that we were hoping to change his tube in the next week or two to a size 16Fr GJ tube with a gastric port for drainage (and get rid of his NG tube in his nose). So I will run fluids tonight through his central line and call in the morning to see when radiology can put in his new tube. Not great for his weight, especially since he managed to lose weight on our trip (down to 15lbs 14oz).

Never a dull moment around here...