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On September 21/05 we were blessed with a beautiful son. Born with a chromosome 12q deletion (q15q21.2), the challenges were many...cleft lip/palate, complex feeding issues, developmental delays, failure to thrive, multiple infections, blood clots, asthma, sleep apnea, GI and pulmonary bleeds, TPN dependency and kidney issues. Noah embraced life and taught us how to love. On July 29/09, Noah's journey ended, leaving us on a new journey...this journey on the pathway of grief...
2 comments:
Definitely an awesome weekend...we all came home tired out from all the fun. We're so glad you guys were able to come - although we were all pretty jealous of your version of "roughing it"!
just looking at that picture makes us realize how much we miss you all!! Glad you had a good weekend!
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