Clinic

TPN Clinic...bad news and maybe, possibly good...??

The bad...there will be no surgery happening anytime soon. Yes, I'm calling this bad...I was SO hoping we had found a problem we could fix!! But our surgeon is not convinced that she can do anything to help Noah. The possible malrotation that I was hoping would be the source of some issues, may only be the heaviness of the GJ tube weighing down his intestines, in which case, surgery would not help. To put it bluntly, she doesn't know if he could survive a major abdominal surgery, and to take that risk when we don't know if there will be any benefit is just not worth it. She also believes we have exhausted the TPN route as well and if we went that route again, he would not survive the line complications. We are at the end of what they can offer him right now. Difficult words to hear...

Which leads us to the possibly good news...it is time for a second opinion...new eyes to look at the situation. Our doctors are going to consult Toronto Sick Kids. At this point we will try to do a teleconference, rather than having to travel. Praying for some amazing new ideas to come out of this!!

To top off the day, Noah continues to struggle this evening. His lungs sounded ok at clinic, so likely a virus, but he is still febrile and lethargic. The question will be whether I can keep him hydrated with just his GJ tube while this virus runs it's course. His sugars keep dropping too, which I've been able to bring back up, but it makes me nervous to try and manage him like this at home.

Praying things look better in the morning...