Wednesday, December 17, 2008

Clinic

TPN Clinic...bad news and maybe, possibly good...??

The bad...there will be no surgery happening anytime soon. Yes, I'm calling this bad...I was SO hoping we had found a problem we could fix!! But our surgeon is not convinced that she can do anything to help Noah. The possible malrotation that I was hoping would be the source of some issues, may only be the heaviness of the GJ tube weighing down his intestines, in which case, surgery would not help. To put it bluntly, she doesn't know if he could survive a major abdominal surgery, and to take that risk when we don't know if there will be any benefit is just not worth it. She also believes we have exhausted the TPN route as well and if we went that route again, he would not survive the line complications. We are at the end of what they can offer him right now. Difficult words to hear...

Which leads us to the possibly good news...it is time for a second opinion...new eyes to look at the situation. Our doctors are going to consult Toronto Sick Kids. At this point we will try to do a teleconference, rather than having to travel. Praying for some amazing new ideas to come out of this!!

To top off the day, Noah continues to struggle this evening. His lungs sounded ok at clinic, so likely a virus, but he is still febrile and lethargic. The question will be whether I can keep him hydrated with just his GJ tube while this virus runs it's course. His sugars keep dropping too, which I've been able to bring back up, but it makes me nervous to try and manage him like this at home.

Praying things look better in the morning...

5 comments:

Kim said...

So sorry that you didn't get a lot of answers today...but glad to hear that they are open to second opinions. We'll pray for that new batch of doctors too! Prayers for all of you...

Sandie said...

So sorry that you didn't get the answers you were looking for...Praying for wisdom for the doctors at Sick Kids in Toronto..
Hugs to you from California!

Jolene said...

Oh Nichole...I feel heavy for you right now, reading this. Prayers for Noah, your family and yourself.

Eyesore Designs said...

Nichole, sorry to hear of the lack of information you have been able to receive. I am SO hoping that Sick Kids Toronto will be of some help to you - dealing with them on a personal level with Chandler - the hospital is AMAZING - one (if not THE) best hospital in the world. You should be in good hands there. May this holiday season shine some light on you and your family.

Best wishes,
Sandi
-September Mommy's Group.

Jamie said...

I had some catching up to do on your blog today. You guys must feel so helpless so much of the time. I really hope that the 2nd opinion gives you some more options for Noah. In the meantime, I hope you can stay out of the hospital over the Christmas break. Are the other kids feeling better? I can't believe Josh threw up at his concert :P