One Step Closer

One step closer today...finally out of the monitored bed this afternoon and back "home" (by home I mean CH5 of course!). Took us a while to convince everyone that Noah was ready to come off the monitors. He has sufficienty scared everyone this admission, so caution has been the name of the game here.

Never been so happy to be back here!!

The past few days have had their ups and downs. I didn't have access to the computer for a bit, which is the reason for the lack of updates. We'll start with Monday morning, our first morning out of PICU...Noah begins spiking fevers again...high fevers...septic looking fevers. Blood cultures were drawn, antibiotics started, and by noon, his temp had come down and he was looking quite good. I felt pretty confident at that point that this was probably just a new virus he'd picked up. Tuesday morning, we heard from the lab. His culture...our week old, brand new line...is already infected with a gram negative bug. Just found out this evening it is E.Coli. So very, very frustrating...seems we just can't catch a break this admission.

The good news is that he seems to be responding well to the antibiotics and looks quite good today. This gives me hope that we will be able to save this precious, precious line. But the awful reality, is that we just don't know right now if it can be completely cleared. Repeat cultures were drawn this morning, and so we wait, hope and pray that these will be negative. Everyone is on the same page, and we all agree that losing this line is just not an option. So we will agressively treat Noah with the line in place, taking our chances that it will be enough. We all know that time is of the essence now, and the plan is to get Noah home on TPN and IV antibiotics as soon as things can all be sorted out and put into place. I hate wasting precious days here in hospital. We are doing a trial tonight off the CPAP, and just on oxygen to help figure out Noah's requirements for home.

Home...all we want is to just get home.