Wednesday, January 07, 2009

One Step Closer

One step closer today...finally out of the monitored bed this afternoon and back "home" (by home I mean CH5 of course!). Took us a while to convince everyone that Noah was ready to come off the monitors. He has sufficienty scared everyone this admission, so caution has been the name of the game here.

Never been so happy to be back here!!

The past few days have had their ups and downs. I didn't have access to the computer for a bit, which is the reason for the lack of updates. We'll start with Monday morning, our first morning out of PICU...Noah begins spiking fevers again...high fevers...septic looking fevers. Blood cultures were drawn, antibiotics started, and by noon, his temp had come down and he was looking quite good. I felt pretty confident at that point that this was probably just a new virus he'd picked up. Tuesday morning, we heard from the lab. His culture...our week old, brand new line...is already infected with a gram negative bug. Just found out this evening it is E.Coli. So very, very frustrating...seems we just can't catch a break this admission.

The good news is that he seems to be responding well to the antibiotics and looks quite good today. This gives me hope that we will be able to save this precious, precious line. But the awful reality, is that we just don't know right now if it can be completely cleared. Repeat cultures were drawn this morning, and so we wait, hope and pray that these will be negative. Everyone is on the same page, and we all agree that losing this line is just not an option. So we will agressively treat Noah with the line in place, taking our chances that it will be enough. We all know that time is of the essence now, and the plan is to get Noah home on TPN and IV antibiotics as soon as things can all be sorted out and put into place. I hate wasting precious days here in hospital. We are doing a trial tonight off the CPAP, and just on oxygen to help figure out Noah's requirements for home.

Home...all we want is to just get home.

8 comments:

Maroo said...

Yeah! An update!

Gosh...I was so hoping that no news was good news...and I guess it sort of was...

I can't believe that central line is already infected! At least they caught it fast. Hopefully they got it.

Keep us posted!

Still praying...I think about you guys throughout the day...

teresajoy said...

Nichole, I'm so glad to see an update!!!!!! Thank you so much for taking the time to post this! I hope that infection gets cleared up fast!

Anonymous said...

Praying constantly that you can come home, so that you and your family can enjoy him every minute and that the Lord would get rid of this infection quickly. Hugs to both of you...mom

kimmylaj said...

thank you so much for updating us, i have been thinking of you and noah quite often. i'm glad to hear you are one step closer to home, and hoping that you get the test results you are hoping for today with regard to the line.
as always still praying.
take care

Anonymous said...

Fingers crossed that Noah does sufficiently well at home in hospital and is soon allowed home, home!

Mandy

Anonymous said...

Hi Nichole,
Glad to hear Noah's back on CH5. Praying he and you can soon be home - you must be so tired of hospital walls! Praying for daily encouragement and peace for you and your family.

Heather

The Keowns said...

so glad to hear your back in ch5. Cassidy is wondering if Noah opened his present yet.

Jamie said...

Oh, I hope you can go home too - I'm glad you're in your familiar ward at least and making the preparations for getting out of there!