Thursday, January 08, 2009

Day 22

A good day today...

Noah looks great...full of smiles and giggles for everyone, looking better than he has looked in a very long time...he had an absolute blast with music therapy...reminding me over and over and over what we have been fighting for these past few weeks. So very thankful...

The overnight oximetry went well, so Noah is off the CPAP and he will go home using 1 litre of oxygen for sleeping again. Started him back on a low dose of enoxyparin (blood thinner) so it's injections twice a day again. Although not the best thing for Noah with the risk of bleeding, however protecting the line from clots is the top priority. No more fevers and so far the 2nd set of blood cultures are negative. We should get final results tomorrow. ID's opinion is that this infection likely did not originate from his line, but rather from his gut (since it's a gut bug and he had all those bleeds), considering how quickly he has recovered from it. This is good news, as hopefully that means our line has not colonized itself with the e. coli. Although we will never know for sure, and the line is still at risk, so we will still be cautious and treat with IV antibiotics for a few weeks.

Discharge plans are in the works...hopefully everything will be in place for next week. These walls are closing in on us here, especially with Noah still in isolation. What would we do without our DVDs! (Cassidy, Noah is loving his new baby einstein DVDs, especially the part with the bugs...makes him giggle!!)

10 comments:

Anonymous said...

What wonderful news, Home is finally on the horizon and it looks as if you can all breathe easy for a while!

I am so happy for you, your family and of course "Little Noah" :o)

Mandy (DISboards - llurgy)

Anonymous said...

Oh what a blessed relief!
I'm so very,very happy for you and hoping this streak of better luck continues.
Linda

Kathy's corner said...

Rejoicng with you. Can hardly wait to see you guys on Sunday. Excited to hear the giggles again. We are praying that God would place his hedge of protection around this line. Praying this is your last weekend in hospital, and that you can go home. Love you ..Mom and Noah, lots of hugs from granny xoxoxoxoxo

Anonymous said...

So glad to hear he is doing better. It makes my heart smile :)

Maroo said...

I am in awe...of a God that is so good! He is good regardless of the outcome of anything...but is so wonderful to see Him answering our prayers and giving you more time with this little miracle!!

I am praying for all of you...especially your sweet children, Kailyn and Joshua. I know this must be hard on them, too.

Hang in there! The "home light" is on at the end of this tunnel!!

Kim said...

Awesome news. I'm glad that home is on the horizon. I, too, will be praying for protection of that line. Praying for rest and patience for you as you wait to go home. Sorry, I've not been around, but we have too many germs in our house and I really don't want to be responsible for passing them on to Noah. Evne though I've not been there...we are praying and loving you from here! Love you Bean! And I miss you Nichole!

teresajoy said...

What fantastic news!!! I'm so glad it looks like you will be going home soon!

kimmylaj said...

good job noah , you are such a little fighter, you are one strong little boy, with strong family support, i am so glad to hear how much better you are doing

Carol said...

Praise God! We will continue to keep precious Noah in our prayers. Hopefully you will be home in your own bed soon.

Carol ( oklamomof4boys)

Jamie said...

Wow - that would be so great if you could get back home again. It's been a LONG 22 days for you guys!!