Friday, January 02, 2009

PICU Day 15

Noah spent a few hours off the CPAP today, charming the nurses with his infectious smile. He still works quite hard to breathe while he is off, and tires very very quickly, but the improvements are slow and steady. Xrays show alot of chronic lung changes, so we may have to accept that some of this may be permanent lung changes. Noah's new line is working beautifully and the TPN is helping him gain back some of the weight he lost in the past month at home. It makes me confident that we have made the right decisions for Noah...he has proven that he is not ready to stop fighting either. Sometimes I wonder how many times we can be so lucky (although luck isn't really the right word)...is there a quota of miracles out there?? I certainly hope we haven't used them all up yet...we need an endless supply around here!

Looking forward to a quiet weekend here, and to the end of the holidays. Monday we should be able to put together a plan with everyone to get Noah back to the ward and one step closer to home.

Thank you all for your many prayers and comments. Thank you especially to Kailyn for your comments. I miss you too and can't wait to see you this weekend!

6 comments:

Kim said...

HI Nichole - great that Noah is stealing the show with his smiles...can't wait to see one in person! I was hoping to visit tonight (Friday) but Mattea had a low fever all day so I really need to stay away (I would hate to bring in germs). Hopefully I'll be able to come over the weekend. You are in my thoughts and prayers...
Give that Bean a hug from his "auntie" Kim. And I too, think Kailyn's comments on your blog are precious...her love and concern for Noah is so evident. She is one special girl (Josh is special too!).
Hugs...

Ramona said...

Wow- God is amazing. I'm praying that you, Nichole, won't get sick or anything at this time either so you can have energy to keep going and keep following as God leads.
Ramona
PS Kailyn made me get teary- what a sweetie

LuvGoing2Disney7 said...

Slow and steady wins the race :)

Keep going Noah. I can't wait to see pics of your Disney trip

teresajoy said...

Oh that boy! I'm sure he has all the nurses wrapped right around his little finger, doesn't he!

kimmylaj said...

just checking in, hugs to noah, hearing he is doing better makes my day

Maroo said...

We are still praying for you guys!! :)