Day 22

A good day today...

Noah looks great...full of smiles and giggles for everyone, looking better than he has looked in a very long time...he had an absolute blast with music therapy...reminding me over and over and over what we have been fighting for these past few weeks. So very thankful...

The overnight oximetry went well, so Noah is off the CPAP and he will go home using 1 litre of oxygen for sleeping again. Started him back on a low dose of enoxyparin (blood thinner) so it's injections twice a day again. Although not the best thing for Noah with the risk of bleeding, however protecting the line from clots is the top priority. No more fevers and so far the 2nd set of blood cultures are negative. We should get final results tomorrow. ID's opinion is that this infection likely did not originate from his line, but rather from his gut (since it's a gut bug and he had all those bleeds), considering how quickly he has recovered from it. This is good news, as hopefully that means our line has not colonized itself with the e. coli. Although we will never know for sure, and the line is still at risk, so we will still be cautious and treat with IV antibiotics for a few weeks.

Discharge plans are in the works...hopefully everything will be in place for next week. These walls are closing in on us here, especially with Noah still in isolation. What would we do without our DVDs! (Cassidy, Noah is loving his new baby einstein DVDs, especially the part with the bugs...makes him giggle!!)