A long day...weekends are always long here, and it's been a frustrating day dealing with the lack of communication from the team that is on call. Noah's oxygen requirements have been increasing overnight and today, instead of the decreasing I wanted to see. He has gone from needing 1Litre yesterday to 3Litres today and we are having to do even more frequent masks. His chest xray this morning did look improved from Wednesday, so it seems that we are kicking the pneumonia. But it is the asthma/reactive airway stuff that is the main issue now. We started a course of IV prednisone (steroids) today, so hopefully that will help open up those lungs. Despite this all, Noah is in pretty good spirits and we are both starting to go a bit stir crazy in here.
Disappointing, as I was really hoping for home by tomorrow. Instead I continue my lesson in patience...
On September 21/05 we were blessed with a beautiful son. Born with a chromosome 12q deletion (q15q21.2), the challenges were many...cleft lip/palate, complex feeding issues, developmental delays, failure to thrive, multiple infections, blood clots, asthma, sleep apnea, GI and pulmonary bleeds, TPN dependency and kidney issues. Noah embraced life and taught us how to love. On July 29/09, Noah's journey ended, leaving us on a new journey...this journey on the pathway of grief...
About Me
- Nichole
- I am mom to 3 beautiful children. I also work casual as a nurse. Our life is a crazy one, and nothing like we ever expected it would be. Yet, this journey has changed me and the way I view others. And it has helped us slow down and enjoy the most precious things in life. I wouldn't trade those lessons for anything.
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5 comments:
Hugs!!!!!
hang in there!! steve had pnemonia this week, he was pretty knocked out, and he is like 25 times bigger the Noah so I can only imagine how rotten this must be on him.
Awesome news that the line is staying safe!
Special prayers from our small group this evening...we missed you and Noah tonight but you are always in our prayers. Hugs to my Bean...see you in the morning.
I am still praying for sweet Noah!!!! :)
Just wanted to let you know we are thinking about you guys!!!!
:)
I'm sorry you won't be going home today like you'd hoped. I pray that they get Noah on the mend soon and you can get out of there!
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