Guess I shouldn't have posted that Noah was doing better...
Yesterday he began getting progressively worse again during the day and is now spiking high fevers...we are off to the ER. Please pray that his line is still safe and that we can get this pneumonia kicked once and for all. With less than 3 weeks to his wish trip, we are all very worried and discouraged...
On September 21/05 we were blessed with a beautiful son. Born with a chromosome 12q deletion (q15q21.2), the challenges were many...cleft lip/palate, complex feeding issues, developmental delays, failure to thrive, multiple infections, blood clots, asthma, sleep apnea, GI and pulmonary bleeds, TPN dependency and kidney issues. Noah embraced life and taught us how to love. On July 29/09, Noah's journey ended, leaving us on a new journey...this journey on the pathway of grief...
About Me
- Nichole
- I am mom to 3 beautiful children. I also work casual as a nurse. Our life is a crazy one, and nothing like we ever expected it would be. Yet, this journey has changed me and the way I view others. And it has helped us slow down and enjoy the most precious things in life. I wouldn't trade those lessons for anything.
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12 comments:
I am so sorry... :( Hugs and prayers coming your way!
Praying so hard that everything is ok and you get him better and home soon.
Alison - Andrew's mom and Disboards
www.andrewsbravejourney.blogspot.com
Bless your heart!!!
We are praying!!!!!!!!!!
my name is Alisa, I've followed Noah since he was born. As always my thoughts and prayers are with you.
Oh no, I am so sorry. I am sending out an email to everyone I know to pray for him. Keep us updated when you can.
Carol ( oklamomof4boys)
Oh, I am so sorry.We are praying that he will get rid of this quickly. mom
Hugs & Prayers...
Praying for sweet Noah and for your entire family for strength, courage and healing.
Kristie
(Sept05 Mommies)
Hoping and praying that Noah pulls through safe and sound and is able to get back home quickly. He needs to go on his trip!! You all need it so much
Mandy (llurgy - Becca's mum - DISBoards)
oh no. so sorry to hear you are headed back to the hospital. i will keep noah and your family in my prayers as always
We love you guys and will be praying for a short hospital stay and that your wish trip would become a reality!
My heart is just breaking for Noah right now. I felt this overwhelming need to pray for him and my prayers are desperate for you guys. Lord, PLEASE take care of this sweet family. It is our hope and prayer that they would be able to spend many more years together...starting with this WISH trip. Please give them strength to keep on fighting. Especially to Noah. But also to Nicole and the rest of the family. *tears* We love you guys.
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