Those lungs aren't bouncing back quite as quickly as I'd like...my patience is being tested, sitting in here...anxiously wanting to be at home doing last minute planning and packing. After a quiet night, Noah's lungs didn't sound so great this morning...we think perhaps we have been letting him go too long between ventolin masks. He had come off the oxygen for a while yesterday, but he is back to needing it continuously again today. So this morning we started scheduled masks for the next 24 hrs in the hopes of getting his breathing and wheeziness better under control. Never fun having to wake him during the night for the masks, but hopefully the morning won't be quite so rough for him.
On September 21/05 we were blessed with a beautiful son. Born with a chromosome 12q deletion (q15q21.2), the challenges were many...cleft lip/palate, complex feeding issues, developmental delays, failure to thrive, multiple infections, blood clots, asthma, sleep apnea, GI and pulmonary bleeds, TPN dependency and kidney issues. Noah embraced life and taught us how to love. On July 29/09, Noah's journey ended, leaving us on a new journey...this journey on the pathway of grief...
About Me
- Nichole
- I am mom to 3 beautiful children. I also work casual as a nurse. Our life is a crazy one, and nothing like we ever expected it would be. Yet, this journey has changed me and the way I view others. And it has helped us slow down and enjoy the most precious things in life. I wouldn't trade those lessons for anything.
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3 comments:
Praying for Noah and all your family....
Kristie
One thing I have learned when praying for Noah...don't stop! Because he tends to surprise me and get better fast, but can decline fast, too. So, persistent prayers for Noah!! And they will continue!
Oh, the poor little guy! He just likes to keep us on our toes, doesn't he!
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