A Better Day

Just when we were all beginning to get quite concerned with Noah's continued dependency on the CPAP, he decided that today he was done with it. The plan this afternoon was to try to switch him from a full face mask to a nasal CPAP mask, so that we would be able to transition to the ward more quickly. But Noah was very, very unhappy with just the nasal mask and kept trying to pull the whole thing over his mouth...yes, he was very attached to his full mask!! After a big wrestling match with 4 of us trying to hold this mask over his nose, Noah won...we decided to just take the whole thing off and see what he would do. He has spent the whole evening a much happier boy, with just oxygen by nasal prongs and doing very well maintaining his sats. He is still very ventolin dependent, but this has been a major victory today! We will see how the night goes, as he always has more difficulty when sleeping. He may need to have the CPAP back on for the night, but if we can keep him off while he is awake, then we are one step closer to home.

Thank you Mom and Dad for coming to help out with things at home. We are so grateful.