Noah is doing well on the ward...almost completely weaned off the oxygen during the day, as well as the ventolin. He is getting pretty bored (still isolated because of the RSV)...he has once again bounced back just as quickly as he went downhill. I do not know how his tiny body can fight so very hard. He continues to amaze me.
The issue we still need to resolve is his stoma breakdown. We are waiting to hear back from the surgeon...and if the plan is still to wait on surgery, then hopefully we can talk about plans for discharge.
Definately going stir crazy here now, with Noah looking so much better...we just want to be home!
On September 21/05 we were blessed with a beautiful son. Born with a chromosome 12q deletion (q15q21.2), the challenges were many...cleft lip/palate, complex feeding issues, developmental delays, failure to thrive, multiple infections, blood clots, asthma, sleep apnea, GI and pulmonary bleeds, TPN dependency and kidney issues. Noah embraced life and taught us how to love. On July 29/09, Noah's journey ended, leaving us on a new journey...this journey on the pathway of grief...
About Me
- Nichole
- I am mom to 3 beautiful children. I also work casual as a nurse. Our life is a crazy one, and nothing like we ever expected it would be. Yet, this journey has changed me and the way I view others. And it has helped us slow down and enjoy the most precious things in life. I wouldn't trade those lessons for anything.
Posts
5 comments:
We want you home as well...praying for some answers about his stoma and some discharge planning! Hugs to my Bean, and you too - Nichole! Hopefully, you'll be gone by the time I'm back at work on Wednesday!
This is great news to read, Praise God and may He continue to heal Noah, provide an answer for the stoma and get you both home.
Thanks for keeping us all updated.
Kristie
God's hand on Little Noah is so evident. He never ceases to amaze me... :-)
Looking forward to a post saying you are back home, together as a family again.
Ramona
I hope this song encourages you like it did me:
Lyrics of song "While I'm Waiting" of Artist "John Waller"
I'm waiting
I'm waiting on You, Lord
And I am hopeful
I'm waiting on You, Lord
Though it is painful
But patiently, I will wait
I will move ahead, bold and confident
Taking every step in obedience
While I'm waiting
I will serve You
While I'm waiting
I will worship
While I'm waiting
I will not faint
I'll be running the race
Even while I wait
I'm waiting
I'm waiting on You, Lord
And I am peaceful
I'm waiting on You, Lord
Though it's not easy
But faithfully, I will wait
Yes, I will wait
I will serve You while I'm waiting
I will worship while I'm waiting
I will serve You while I'm waiting
I will worship while I'm waiting
I will serve You while I'm waiting
I will worship while I'm waiting on You, Lord
We are still praying for u guys!!!
And I love that song!!
Glad Noah is feeling better. Hope u get home soon!
Post a Comment