Sorry for the lack of updates, but the past week has been a complete whirlwind. We all had a fantastic time...loved spending the past couple of days with Doris & Ed at Seaworld and Epcot. I can't wait to blog in detail about the entire week and post pictures.
Our last night turned out to be eventful...Brad spent it in the ER...nope, not with Noah...Kailyn ended up with a bad ear infection...was in alot of pain, and the urgent care clinic wouldn't accept Canadian insurance. So they had to sit in the ER for a few hours...got some antibiotics and ear drops and she's good to go again! She still felt pretty rotten today, but hopefully tomorrow she will begin to feel better.
It was very difficult to say goodbye today to GKTW. The place is magical and we already can't wait to go back to visit. (Mom & Dad, we think you would love to volunteer here, by the way!!) But moving to Pop Century (a Disney resort) to extend the trip on our own, definately helped. We had a great time suprising the kids as they had no idea we were staying longer. We are now settled in our new home...definately much more crowded than last week, but hopefully it will be a bit more relaxing.
Noah is still "ok"...definately not great, but holding his own. His asthmatic symptoms are quite out of control and he is needing lots of Ventolin, extra oxygen and some masks here and there when things get really bad. I am not quite sure why he is having such a tough time, and he gets so tired out just from the work of breathing. We will definately need to address this when we get home, but for now, we are praying that we will get another week down here to just enjoy our family time.
Tomorrow we are off to Disney's Hollywood Studios...looking forward to our favorite ride...Tower of Terror!! Hopefully the weather warms up...it's been very chilly the past few days...even for us Canadians!!
On September 21/05 we were blessed with a beautiful son. Born with a chromosome 12q deletion (q15q21.2), the challenges were many...cleft lip/palate, complex feeding issues, developmental delays, failure to thrive, multiple infections, blood clots, asthma, sleep apnea, GI and pulmonary bleeds, TPN dependency and kidney issues. Noah embraced life and taught us how to love. On July 29/09, Noah's journey ended, leaving us on a new journey...this journey on the pathway of grief...
About Me
- Nichole
- I am mom to 3 beautiful children. I also work casual as a nurse. Our life is a crazy one, and nothing like we ever expected it would be. Yet, this journey has changed me and the way I view others. And it has helped us slow down and enjoy the most precious things in life. I wouldn't trade those lessons for anything.
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11 comments:
oh The Tower of Terror - my fave too! Glad to hear that things are going well...and that Kailyn is on the mend (did you ever think you'd be in the ER with one of your OTHER kids??) Hugs to my Bean and all the rest of you...enjoy your week.
tHANKS FOR POSTING.We have been anxiously awaiting news. Hope your next weekis quiet, and that Noah begins to breathe better. And Kailyn, as well, that she gets rid of this ear infection before your flight home. When do you fly back?
Think of me on the Tower of Terror. Also, MY favorite ride.
Thanks for posting-I'm glad you all are having a good time. We will continue to pray for good health-for ALL! Nathan's favorite ride at Hollywood Studios is Toy Story. I hope you have some wonderful, blessed family times.
Carol ( oklamomof4boys)
Glad you're able to stay longer! I hope Kailyn can enjoy the activities with her ear infection and that it clears up before your next flight. I'm praying for you and the many decisions you need to make through the day for helping Noah breath.
Ramona
We will pray that Kailyn heals quickly. Have a relaxing week at the Pop Century. That's where we stayed 3 years ago. (the 50's, pool shaped like a bowling pin)We will continue to pray for Noah and all of you too
Erica
SOunds like a wonderful time! And Noah buddy...I couldn't handle the humidity down there either...my lungs were awful too! Praying for health and safety for you all!
Thank you for the update...I was praying that you were just so busy having fun, you didn't have the chance to write! I hear you with the extended trip being the only thing that made leaving GKTW bearable...we stayed for 3 nights extra on our own. But it wasn't a surprise for our boys...that must have been amazing for yours!!!
Enjoy the rest of your time, we'll be praying for good health all around...and we'll look forward to hearing about your adventures!
Alison
I'm so glad you guys are able to stay the extra week. We'll be praying for Noah that he could hold out for the rest of the time. That must've been different for you guys to take one of your OTHER kids to the ER :) Enjoy the rest of your trip!!
thanks for the update, so glad you are having a wonderful time. I hope kailyn is feeling better and you all have another great week. enjoy, as always prayers and pixie dust headed your way
I know what you mean by being cold. We're also in Florida, we've been in Ft. Pierce & are now in Marathon. Looks like it's getting better tomorrow & for the weekend. I"m so thankful you guys were able to take this trip. You continue to be in our prayers. God's richest blessings to you all!
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