I would love to be able to post that Noah is well, but once again, he has managed to catch yet another virus. He must have brought it home from the hospital, as his symptoms started Thursday morning already...runny nose, cough, rattly chest...very much a repeat of how he looked in Florida. We have added Singular to his list of asthma meds, and so I'm hoping that he will be able to fight it off this time. However, with the RSV and pneumonia being so recent, I am concerned once again about those lungs. No fever, and acceptable O2 sats, so for now, we wait this out again and try to get in as many home days as we can.
I am so very tired of this constant state of instability.
On September 21/05 we were blessed with a beautiful son. Born with a chromosome 12q deletion (q15q21.2), the challenges were many...cleft lip/palate, complex feeding issues, developmental delays, failure to thrive, multiple infections, blood clots, asthma, sleep apnea, GI and pulmonary bleeds, TPN dependency and kidney issues. Noah embraced life and taught us how to love. On July 29/09, Noah's journey ended, leaving us on a new journey...this journey on the pathway of grief...
About Me
- Nichole
- I am mom to 3 beautiful children. I also work casual as a nurse. Our life is a crazy one, and nothing like we ever expected it would be. Yet, this journey has changed me and the way I view others. And it has helped us slow down and enjoy the most precious things in life. I wouldn't trade those lessons for anything.
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9 comments:
Hugs to all of you. I wish I could help you out more (as always, let me know if there is more I can do for you). Prayers for healthier lungs today. hugs to my Bean.
Ugh. Thinking of you guys once again. Hope you can stay home for a bit. I bet you can't wait to be done with the cold/flu season...
Oh darn....sick again! I hope its just something quick....nice weather can't come soon enough! I keep bringing this up, but did you ask the doctors about Advair?? It really really helps me. Hugs and prayers for a better tomorrow! Thanks sooo much for keeping us posted! I don't always comment due to time, but I am praying and following along!
I'm sorry that Noah is sick again.... Can't be fun for any of you. *hugs*
yes, cold and flu season are almost over. Hopefully he can just stick this one out at home while the weather warms up. He probably misses the nice warmer florida sun!
Nichole, I am so sorry!!!
I will continue to pray for all of you!
Was good to see you yesterday. Good to hear Noah giggling and up to his usual tricks, Praying that God would keep beathing his life into him. Prayin g for you all. mom
I know I have no way of relating. I know you have probabley heard this a million times. But here it goes... "I can do all things through Him who strengthens me". All things! Even when we are weakest and are sure we will crumble. Even when you face the hospital another time. (and when you rejoice in coming home again!) He's walked through it all before you. Hold on to your Heavenly Father. And hold on to the many prayers all over the world. I'll be praying for strength and peace for you, Brad, the kids, and Noah- no matter the circumstance. Take care!
Praying that the Lord brings rest and health to you all.
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