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On September 21/05 we were blessed with a beautiful son. Born with a chromosome 12q deletion (q15q21.2), the challenges were many...cleft lip/palate, complex feeding issues, developmental delays, failure to thrive, multiple infections, blood clots, asthma, sleep apnea, GI and pulmonary bleeds, TPN dependency and kidney issues. Noah embraced life and taught us how to love. On July 29/09, Noah's journey ended, leaving us on a new journey...this journey on the pathway of grief...
6 comments:
Hi! I'm glad you decided to create a blog for Noah. It will be great to check it out and see what's new. He's starting to look really different - I can tell he's filled out a bit. And he's got so much hair! I'm glad he came through the surgery well and we'll be praying for his reflux and that he can keep gaining weight.
We love you guys!
Jamie, Erik & Micah
I am too glad you made a blog!! I shared it with my junebugs message board!
I agree with Jamie on how different he is looking, and I still think he looks so much bigger then 5 pounds!! I like the pick of him in the 'cat in the hat' hat.
see you at christmas (where ever it is!!) i am excited to see and hold noah!
Erin
hi, i found your blog via micah's. What a little blessing Noah is. I just wanted to say that Noah and your family are in my prayers. God can do miracles as is evident in Noah!
God bless, and Merry Christmas.
Hi Nichole:
I just got an email from my aunt, forwarding an email from her friend Emmy, from Ramona! (Did you follow that connection?)
Congratulations on Noah's birth! The Lord has chosen special parents for a special baby. I am also a mom to a little boy with PRS and just started a blog on him last week! (if you're interested, check out jewels for his crown.blogspot) I'd love to chat with you or email anytime as my wee boy is now 4 years old.
lesliemkent@rogers.com
Merry Christmas!
Sorry, that's 'jewels in his crown.blogspot'. (not FOR)
we have been thinking about you & praying for you & Noah. what a little miracle he is! we are so happy he is doing well & will continue to think of you in the days to come! thanks for letting us in on the life of your family! Praise God!
p.s. we are friends of Erik & Jamies.
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