Sunday, November 16, 2008

Day 23

The days continue to drag on here. No huge changes to write about. Still struggling with the feeds. The watery stools continue and we haven't been able to move up on the Neocate. At least the downward weight loss spiral seems to have stopped and he is settling in around 6.7kg. His energy level is still low (no weight bearing or bum scooting down the halls) and I really hope all that energy wasn't coming from his TPN. He seems to be having these intermittent pains, which I am assuming are gut related. Praying we can figure out a way to make him comfortable all the time and not just most of the time.

We are trying something new to get the essential fatty acids into Noah. Apparently, in some people, they can be absorbed through the skin in the same way that we absorb Vitamin D from the sun. So every evening, we will be lubing Noah up with 5mL of Sunflower oil (which is actually alot, when you try to rub that much oil into Noah's tiny body). It will be a few weeks of trial before we will know if this will make a difference or not, but if it does, what a simple solution this would be for part of Noah's nutritional needs.

The IV antibiotics finished yesterday and today we switched Noah's antifungal to GJ rather than IV. Still have to figure out a way to get all Noah's fluid requirements sorted out to be able to get rid of the IV completely and get him home.

4 comments:

Kim said...

Hugs and prayers....

laura.h said...

I'm laughing at the image of Noah all lubed up with sunflower oil! We continue to pray for you guys. We just got back from the Congo late Saturday night. We continue to pray for you and we're so thankful that Noah is in Canada where he can receive excellent medical care. I saw so many kids that just have no hope..
Love you guys, and hope we can see you soon.

Kim said...

Noah - I guess I should call you "greasy Bean" from now on! Nichole - at least you'll have soft hands! Hugs...

Dianne said...

still praying...