Wednesday, November 19, 2008

Day 26

The "D" word is finally being discussed! The plan is for a weekend pass, and then if bloodwork looks good on Monday, then he will be discharged. Hooray!!

We are still struggling with weight and watery stools, but it looks as if they will be ongoing issues that we can work on at home. We are doing saline flushes into his GJ every 2 hours during the day and have added potassium to his tube feeds. His IV has been out for 24 hours now, and so far his electrolytes are looking good. So hopefully we have found the right combination of fluids and lytes to keep him stable without a line.

An ultrasound yesterday showed his liver and spleen are still enlarged, however no changes for the worse. His INR and PT (blood coagulation tests) are still high so we are treating with Vitamin K. These are all things that will be followed as outpatient. And no plans for a surgical jejunostomy (J-tube) anytime soon. More discussion as to the benefits of this needs to happen before any decision is made.

Hopefully the next update will be from home this weekend!


Sandie said...

YIPPEE!!!! Here's to the D word!!!

Anonymous said...

that's great....hoping to hear from you at home next time. We are so glad you can update Noah's blog often. I pray for you every time I read it. Sorry I haven't been to visit.....I've got a cold and don't want to pass it on.

Jolene said...

That's awesome. We're still praying for you.

Kim said...

Awesome news, Nichole. Praying for a great and stable weekend for all of you! Hugs...

Anonymous said...

Sending happy thoughts, hugs and prayers from Charlotte.

We pray that Noah goes home soon. May God continue to be with you all during this time.

Take care and God bless!

~Rissa and family