It is official this time...we are home!
A wee bit of weight gain today and bloodwork looked ok, so Noah has been officially kicked out. Hopefully we have found the right combination of saline flushes and extra potassium to keep him stable without a line. It is hard to believe we have come home without a central line. It all feels a bit surreal right now...no TPN to hook up...no fluids to run...no IV antibiotics... This will take some getting used to. Depending completely on his gut is still very frightening for me. Only time will tell if this can be a long term solution, but we will enjoy any time we get without a line to complicate our lives and give us a bit more freedom. This will give Noah's body time to completely heal and not be knocked down again in a few weeks with another line infection. Who would have thought a few months ago that this would even be possible?? Even a week ago I doubted that we would ever get Noah home without a line.
It is definately a day to celebrate God's goodness and faithfulness.
On September 21/05 we were blessed with a beautiful son. Born with a chromosome 12q deletion (q15q21.2), the challenges were many...cleft lip/palate, complex feeding issues, developmental delays, failure to thrive, multiple infections, blood clots, asthma, sleep apnea, GI and pulmonary bleeds, TPN dependency and kidney issues. Noah embraced life and taught us how to love. On July 29/09, Noah's journey ended, leaving us on a new journey...this journey on the pathway of grief...
About Me
- Nichole
- I am mom to 3 beautiful children. I also work casual as a nurse. Our life is a crazy one, and nothing like we ever expected it would be. Yet, this journey has changed me and the way I view others. And it has helped us slow down and enjoy the most precious things in life. I wouldn't trade those lessons for anything.
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7 comments:
WOOHOO! Way to go Bean! I knew you could do it. Celebrating the goodness of God with you today.
That's wonderful - Praise God! We'll be praying that this will work out and that you can be at home for a long time.
Heather
YEAH!!!! Congratulations on being home....God is good.
We shouldn't be surprised when God is at work. We rejoice with you. May GOD be praised....love mom
Praise The Lord!!!!!! We are rejoicing with you and your family. With God ALL things are possible. Give HIM,honour, glory and praise!!! Love Auntie Hilda
I'm so glad to see you're home. I just read your comment on our blog, and I agree. It would be great for you to meet Hope.
Enjoy your family time at home, I know it's precious.
So glad to hear that Noah is home and doing better. God is Awesome! May HE continue to keep you all in HIS care.
Take care and loving you all!
~Rissa and family
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